Champion our cause: Join the TSC Alliance volunteer movement!
The tuberous sclerosis complex (TSC) community is the TSC Alliance’s strongest ally. We rely on our dedicated volunteers to help drive our mission forward and realize a future where everyone with TSC can live their fullest lives. Our volunteer leaders host educational meetings, raise awareness and fundraise, foster local connections and serve as a resource in their communities.
Volunteering with the TSC Alliance is flexible and meaningful. Whether you choose to contribute on a one-time project, an ongoing event, or as part of a larger campaign—virtually or in-person—you can make an impact in ways that fit your schedule and skills. Students and interns can also earn credit for volunteer hours, making participation both practical and rewarding. From flexible, project-based contributions to structured leadership, the TSC Alliance offers opportunities that match your availability and interests. There are two ways to get involved:
- Volunteer-Your-Way: Contribute when you can—intermittent projects, events, or campaigns. Your everyday skills help families, support research, and promote awareness.
- Community Leadership Volunteers: Take your impact further with a structured role. Community Leadership Volunteers commit to a multi-year term, receive ongoing training and mentorship, lead community initiatives, and connect families with resources and support programs nationwide.
Community Leadership Volunteers and other volunteers help make every action count. By contributing your time, experience, and perspective, you help:
- Advocacy: Advocate for research, awareness, and access to care.
- Education: Support and provide understanding of TSC and navigating educational plans.
- Resource & Support: Connect families with local services, programs, and community networks.
- Fundraising: Fundraise to support programs and strengthen community initiatives.
- Peer Support: Connect and support peers while
Together, all volunteers amplify the TSC Alliance mission and strengthen the community. Read through our Leadership Opportunities Summary to learn more about each opportunity and apply for the position you decide is best suited for you.
Join the TSC Alliance in building a collaborative leadership network that puts families at the center—connecting, educating, and empowering the TSC community across the country.
Ready to become a volunteer?
Please fill out our Volunteer Interest Application and a TSC Alliance staff member will contact you soon.
Future Leader Accelerator & Mentorship Program
The Future Leader Accelerator & Mentorship Program, launched in 2026, gives teenagers and young adults (age 17-25) the opportunity to build skills, meet amazing people, and help raise awareness, drive advocacy, and strengthen our mission while being mentored by our experienced volunteer leaders. To be eligible to participate you must have TSC yourself or be a sibling or relative of someone with TSC.
TSC Connect
TSC Connect is an organized partnership of individuals whose lives have been affected by TSC. They commit to offering peer support and sharing their experiences with others who are dealing with the challenges of TSC. Across the nation, TSC Connect is providing the latest medical information, education and support, and words of encouragement and empowerment. Volunteers come to the network with a wealth of knowledge, awareness and experiences. Click the button below to register for TSC Connect.
Step Forward to Cure TSC®
Step Forward to Cure TSC is the largest community event fighting to find a cure for TSC. Over the past 22 years, $23.2 million has been raised through Step Forward to Cure TSC as communities across the country have come together to walk, run or ride and raise awareness of this disease.
Volunteer for Step Forward to Cure TSC today!
Volunteer and join TSC community members, corporate partners, and other supporters to champion the efforts to fund groundbreaking TSC research, offer critically needed support programs, and increase awareness in a three-month-long series of in-person and virtual walks, runs, and rides starting April 12 and concluding the weekend of June 7, 2025.
Recognizing our volunteers
The TSC Alliance thrives on the service of selfless individuals across the country who give of their time, talent, and resources to help us improve quality of life for everyone affected by TSC. Without them, we would not be where we are today. They have propelled our organization to levels once thought impossible — from the original four volunteer mothers who started the organization in 1974 to nearly 2,000 individuals championing our cause each year today!
To celebrate our volunteers, we honor several outstanding leaders every year with three volunteer awards. Click below to learn about each award and how to nominate a deserving volunteer. We’re now accepting nominations through January 9, 2026.