While no one’s experience with tuberous sclerosis complex (TSC) is exactly the same, there are common threads the TSC community shares: overcoming adversity, finding joy in moments small and large, navigating fear, doubt, anxiety and more but ultimately finding courage, and perhaps most importantly relying on the compassionate support of those who have walked the same paths.

Throughout your journey you’ll face challenges, but we encourage you to find hope in the experiences of those affected by this disease and how they are striving to live their fullest lives. Below are stories from our community. May they inspire hope in you.

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Thank you to our TSC Navigator supporters:

Northstar Sponsors

  • Jazz Pharmaceuticals 
  • UCB, Inspired by patients. Driven by science.

Cardinal Sponsors

  • Neurelis
  • Nobel Pharma

Directional Sponsor

  • Noema