Our professional Support Navigators can help guide you along your unique journey. They can help answer your questions, process, and understand your diagnosis, help find TSC recognized specialists, and discuss treatment options.

The journey can seem overwhelming at times and our navigators are available for emotional support and to help connect you with our TSC community.

Meet our Support Navigators


Shelly Meitzler
Director, Outreach & Support

Elizabeth Skufca
Community Programs Manager


Katie Smith
Director, Government & Global Affairs

Get Connected

You can reach out to our Support Navigators in the following ways:

Email:  support@tscalliance.org

Phone:  support line (9am – 9pm ET): 240-463-7250.

Schedule a Call

If you are experiencing a medical emergency, please call 911.

Thank you to our TSC Navigator supporters:

Northstar Sponsors

  • Jazz Pharmaceuticals 
  • UCB, Inspired by patients. Driven by science.

Cardinal Sponsors

  • Neurelis
  • Nobel Pharma

Directional Sponsor

  • Noema