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Diagnostic criteria

In 2021, the International Tuberous Sclerosis Complex Consensus Group reviewed prevalence and specificity of TSC-associated clinical manifestations and updated the TSC diagnostic criteria published in 2013. Clinical features of TSC

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Transition & Adult Years

As people with tuberous sclerosis complex (TSC) age and transition from pediatrics to adult care, certain manifestations which may or may not have been problematic during childhood or adolescence now

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Early & Childhood Years

It is common for medical providers to be unfamiliar with tuberous sclerosis complex (TSC), including neurologists and pediatricians. It is crucial to have a local neurologist and pediatrician involved in

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Spotlight on TSC Alliance

2024 marks the 50th anniversary of the TSC Alliance®! Throughout the year, we’ll celebrate five decades of progress as well as look forward with much promise for the future. In

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Surveillance & management

Managing tuberous sclerosis complex (TSC) across the lifespan requires attentive surveillance and effective strategies. Delve into the challenges and considerations present in both the early and childhood years, as well

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Media

Media members and anyone seeking additional information about tuberous sclerosis complex or the TSC Alliance may direct inquiries to: Jaye Isham Chief Outreach Officer TSC Alliance 8737 Colesville Road, Suite

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Additional Resources

Brain & Epilepsy Organizations Canadian Epilepsy Alliance: www.epilepsymatters.com International Bureau for Epilepsy: www.ibe-epilepsy.org Epilepsy Foundation: www.epilepsyfoundation.org BC Epilepsy Society: www.bcepilepsy.com Montreal Neurological Institute and Hospital: www.mni.mcgill.ca Childrens Neurology: www.childneurologysociety.org Epilepsy

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Healthcare Providers

Tuberous sclerosis complex (TSC) is a complicated disorder that requires lifelong care from a variety of specialists. The TSC Alliance provides the resources below to connect healthcare providers with TSC

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Surveillance & treatment

The following table provides guidelines to help you and your loved one manage the treatment of TSC. Additional information for your physician is available here. Surveillance & management recommendations for TSC