The TSC Alliance has a long-standing history of international involvement within the TSC community: supporting research throughout the world with our Global Alliance Program and International Scientific Advisory Board; hosting or participating in International TSC Research Conferences; and membership within TSC International, a consortium of TSC organizations around the world.
TSC Alliance Global Alliance Program
Officially launched in 2014 with the TSC Alliance of Israel, the TSC Alliance Global Alliance Program was created as a way to address unmet needs within the global TSC community at the country level. This program provides the opportunity for the TSC Alliance to share experiences and assist in the start-up or support of TSC-related organizations in other countries. As there may be cultural, economic and legal differences among countries, the TSC Alliance is willing to work with you to create a step-by-step plan, specific to the needs of your association or country.
A Global Alliance is a structured group of empowered and caring volunteers who work closely with the TSC Alliance to accomplish the following: facilitate local connections for individuals and families affected by TSC, and raise revenue and increase awareness while supporting the mission of the organization. The Global Alliance program fosters stronger links between the TSC Alliance, communities and individuals around the world.
The TSC Alliance is pleased to share our experiences by partnering with the following TSC-related organizations in other countries:
Tuberous Sclerosis Canada Sclérose Tubéreuse (TSCanada ST)
Hungarian Foundation for Tuberous Sclerosis
Tuberous Sclerosis Foundation (Thailand)
If you are interested in starting a TSC organization in your country, including partnering with the TSC Alliance, please contact Katie Smith at firstname.lastname@example.org.
The TSC Alliance collaborates with Tuberous Sclerosis Complex International (TSCi), a world-wide consortium of existing tuberous sclerosis complex associations and organizations, serving as an avenue to empower those affected by tuberous sclerosis complex (TSC), including individuals, families, caregivers, educators and health care providers. In addition, TSCi provides a forum to share information, exchange ideas and methods, co-fund research projects, and promote increased international awareness of TSC.
TSC Alliance also partners with TSCi for the annual TSC Global Awareness Day, held May 15.