Difficulties in school are very common in tuberous sclerosis complex (TSC). Regardless of the intellectual ability, 60% of kids and young adults with TSC will be impacted by scholastic issues. There are often early risk markers of later scholastic difficulties such as the delayed onset of language development, difficulties in social communication, or delays in other developmental milestones.
Many school-aged children with TSC will likely benefit from additional support and/or a personalized approach to their education. The TSC Alliance recognizes parents and young adults often faced many difficulties accessing these supports and are here to help. For additional resources to help you successfully navigate the education system and to connect with our educational advocates, visit our Educational Support page.
The consensus panel recommends the following: