TSC Matters is a bimonthly e-newsletter featuring news from the TS Alliance, TSC research updates, upcoming TS Alliance events and more! Subscribe to stay up-to-date on everything happening at the TS Alliance.
Nominate a TSC researcher or clinician for the Manuel R. Gomez Award
The TSC Alliance is now accepting nominations for the 2023 Manuel R. Gomez Award, which will be awarded at the 2023 International TSC Research Conference. The deadline to submit a nomination is Friday, June 2, 2023. Read More
We’re Hiring: Science Project Coordinator
The TSC Alliance seeks a Science Project Coordinator to monitor progress of multiple research collaborations, develop materials to communicate scientific concepts and impact, report on project outcomes, schedule and plan meetings with clear agendas and follow-up actions, and perform other project management-related functions.Read More
April 2023 Message from the CEO
TSC Alliance President & CEO Kari Luther Rosbeck announces registration opening for the 2023 Regional TSC & LAM Conference Series co-hosted with The LAM Foundation, encourages everyone to participate in a Step Forward to Cure TSC event near you, provides an update on the 22nd Annual Comedy for a Cure held on Sunday, April 2, 2023 and wishes April Cooper a happy retirement! Register for a Regional TSC & LAM Conference near you. Register today for a Step Forward to Cure TSC event near you or participate in our Virtual event in your own neighborhood. Subscribe to TSC Matters, our...Read More
Register today for the 2023 Regional TSC & LAM Conference Series
The TSC Alliance® and The LAM Foundation have joined together once again to co-host four Regional TSC & LAM Conferences in 2023 aimed at individuals with TSC and or LAM and their caregivers.Read More
TSC Remote Assessment and Intervention (TRAIN)
Basimglurant, a new mechanism of action for control of seizures in tuberous sclerosis complex?
Do you or your loved one suffer from epileptic seizures? Noema Pharma is developing basimglurant, a drug with a new mechanism of action and a potential for treatment of seizures associated with TSC. Children older than 5 years, adolescents and adults up to 30 years of age may be able to participate in the study, if their seizures associated with TSC are not sufficiently controlled by their current treatment. The Galene study is currently open for enrollment in the US, Israel, Turkey and Australia. Further sites are opening in the UK, Spain, Italy, Poland and India. To learn more about...Read More
Congratulations to our Volunteers of the Year
Earlier this year, as part of our Volunteer Leadership Summit, the TSC Alliance recognized several volunteers for their outstanding dedication and commitment to our organization and for tireless efforts supporting TSC individuals and families in their communities.Read More
Current Clinical Trials
See below for ongoing clinical trials. For a full list of clinical trials go to the Clinical Trial Finder to find a trial that may best suit your needs.Read More
Transition Readiness Survey
Dr. Amy Paller and Northwestern University/Ann & Robert H. Lurie Children’s Hospital of Chicago would like to invite you to participate in a research study on the readiness to transition to an adult model of health care. This study involves completion of an online survey and more information can be found below.Read More
Ongoing Early Intervention and Autism trials
See below for ongoing trials.Read More