The TSC Alliance is supported by a corps of dedicated volunteer leaders across the country. Whether you are dealing with a new diagnosis or are looking for local resources, they are here to help you!

Our volunteers are parents, relatives, adults with TSC, friends and others all dedicated to providing support to anyone affected by tuberous sclerosis complex (TSC).

In 2023, the TSC Alliance launched a new community support model to create additional opportunities for volunteers to offer tailored support in their community region and to broaden the types of resources available to individuals and families.

Hover over the roles below to learn more:

You are not alone on your journey with TSC.

To get connected with community volunteers in your region, please email our Support Navigators at support@tscalliance.org.

If you are interested in volunteering with the TSC Alliance, please visit our Volunteer page to learn more and complete the Volunteer Interest Application.

Thank you to our TSC Navigator supporters:

Northstar Sponsors

  • Jazz Pharmaceuticals 
  • UCB, Inspired by patients. Driven by science.

Cardinal Sponsors

  • Neurelis
  • Nobel Pharma

Directional Sponsor

  • Noema