Being diagnosed with tuberous sclerosis complex (TSC) can cause significant challenges within your adult life regardless of when you first received your diagnosis. The TSC Alliance is here to help.
From the stress of learning a new diagnosis to potentially processing the emotions of an offspring with this diagnosis to learning how to navigate the medical complexity of routine follow-up surveillance and management in the adult healthcare sector, all while maintaining other responsibilities, can be overwhelming.
In 2012, the TSC Alliance launched our Adult Initiative to prioritize the needs of adults with TSC, invest in research to understand how TSC changes in adulthood, and develop a support network and resources for both young adults and adults. You can find many of these resources in the Navigating the transition years of TSC and Navigating the adult years of TSC guides.
Below you can learn more about other ways to get connected and find support. If you need additional support, please contact our Support Navigators at firstname.lastname@example.org.