fbpx

Page

Brain abnormalities

Several types of brain abnormalities may be seen in individuals with tuberous sclerosis complex (TSC), including cortical tubers, subependymal nodules (SEN), and subependymal giant cell astrocytoma (SEGA). Some individuals will

Page

Brain & neurological function

Multiple manifestations can occur in the brain of someone with TSC. Click on an item listed below to learn more: Brain abnormalities  Epilepsy/seizure disorders In addition to these physical challenges,

Page

Fund research

Investment to Accelerate Research Although significant advances have been made in the diagnosis and treatment of TSC in just the last decade, the vast majority of children and adults with

Page

Additional Resources

Brain & Epilepsy Organizations Canadian Epilepsy Alliance: www.epilepsymatters.com International Bureau for Epilepsy: www.ibe-epilepsy.org Epilepsy Foundation: www.epilepsyfoundation.org BC Epilepsy Society: www.bcepilepsy.com Montreal Neurological Institute and Hospital: www.mni.mcgill.ca Childrens Neurology: www.childneurologysociety.org Epilepsy

Page

Organ & Tissue Donation

Biosample Repository and Natural History Database The TSC Natural History Database collects clinical data used to document the impact of TSC on a person’s health, over his or her lifetime. 

Page

Biosample Repository

The Natural History Database and Biosample Repository has been instrumental in advancing my LAM research. The extensive resources within the database have been valuable for my investigations, and the accessibility

Page

Preclinical research

The TSC Alliance and the Preclinical Consortium have been instrumental partners in establishing the preclinical models and data necessary for development of our candidate therapeutic. The historical data sets, knowledge