The TSC Alliance will be hosting two Regional TSC Conferences and two Transition Workshops in 2024 aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers. Attendees will also have networking opportunities to meet other families and individuals from the area.
Register now! A $10 registration fee per registration includes 2 breaks and a boxed lunch.
One-day Regional Conferences will feature leading local researchers and clinicians specializing in TSC.
Sites include:
- Chapel Hill, NC: Saturday, June 1, 2024. See agenda here.
- Palo Alto, CA: Saturday, November 16, 2024
Topics will include sessions across the lifespan of TSC, including:
- Research updates, including upcoming clinical studies and trials for TSC
- Behavior and mental health
- Genetics and gene therapy
- Women’s health issues
- Seizure types and treatments
- Kidney involvement and treatment options
One-day Transition Workshops will feature local clinicians and resources specializing in the transition from pediatric to adult health care and transitions from postsecondary education that include: further education, employment, and independent living in individuals with TSC.
Sites include:
The sessions will provide families and individuals with recommendations and resources that provide timelines, resources, and supports available on how and when to start preparing for the transition to adulthood for those living with TSC.
Please note: Childcare is not provided at these conferences and workshops.
Regional Conferences and Transition Workshops sponsored by:
Additional support for Regional Conference Series from: