Anne Wolfe

Senior Community Programs Manager

Anne Wolfe, a passionate rare disease advocate, joined the staff as Senior Community Programs Manager in December 2021. Anne has more than a decade of experience in creating events and programming for diverse audiences across patient advocacy, nonprofits, healthcare, and life sciences.

In her role, Anne assists the Community Programs team in developing and implementing programs that build, grow and advance the TSC Alliance volunteer networks across the country with a focus on strengthening the peer-to-peer programs and Community Alliances that support the TSC community. She also serves as staff lead on the TSC Alliance’s Equity, Diversity & Inclusion Task Force and helps accelerate the organization’s efforts to develop and execute strategies that reach, support and connect underrepresented TSC communities. In addition, Anne leads all young adult- and adult-specific programming, including Regional Adult Coordinators and Future Leaders.

She previously worked at Global Genes, leading the development of impactful programs to meet the evolving needs of rare disease patients, families, advocates, and research partners, and supporting the development of strategic partnerships and alliances.

Anne has an honors degree in Peace & Justice Studies and International Relations from Tufts University. In her free time, she loves seeing local live music, watching documentaries, reading and cooking. She lives with her partner and two very cool cats in Boston, MA.

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