Anne Wolfe

Senior Manager, Strategic Projects

Anne Wolfe, a passionate rare disease advocate, originally joined the staff as Senior Community Programs Manager in December 2021. Anne has more than a decade of experience in creating events and programming for diverse audiences across patient advocacy, nonprofits, healthcare, and life sciences. 

In her current role as Senior Manager of Strategic Projects, Anne oversees a portfolio of programs that enhance the strategic vision of the TSC Alliance, maximize efficiency of the staff team, and assist in raising significant revenue to support the growth of research and community programs. She leads meeting planning and logistics for key organizational events, designs and implements volunteer training programs, provides assistance in the strategic planning process, and aids in the development and oversight of new organizational initiatives. She also serves as staff lead on the TSC Alliance’s Equity, Diversity & Inclusion Task Force and helps accelerate the organization’s efforts to develop and execute strategies that reach, support and connect underrepresented TSC communities.  

She previously worked at Global Genes, leading the development of impactful programs to meet the evolving needs of rare disease patients, families, advocates, and research partners, and supporting the development of strategic partnerships and alliances. 

Anne has an honors degree in Peace & Justice Studies and International Relations from Tufts University. In her free time, she loves seeing local live music, watching documentaries, reading and cooking. She lives with her partner and two very cool cats in Boston, MA. 

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