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Shelly Meitzler

Community Programs Manager, East

Shelly has been with the TSC Alliance since January 2017 first serving as the National Walks Coordinator and now as the Community Programs Manager East.  Shelly has been involved with the TSC Alliance for nearly two decades, including serving as Community Alliance Chair, Step Forward to Cure TSC Chair in Delaware/Lehigh Valley and Educational Parent Mentor.  She was a featured speaker during the TSC Alliance’s Congressional Briefing on Capitol Hill, chronicling her journey as a TSC mom to Ashlin and Mason.  Shelly’s story has provided hope as ongoing TSC research has offered new insight over the last decade and solidified her determination to continue to advocate, educate, and raise vital research dollars for all those impacted by TSC.  She is often called upon to provide insight as a parent with new companies working in TSC and in training specialty pharmacies about the need for timely delivery of life-saving medication.  In her role as an educational advocate, Shelly has been supporting TSC families and has conducted school meetings and TSC trainings and provides tremendous insight as a parent having walked the TSC journey – twice.

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