Shelly joined the TSC Alliance in January 2017 after spending 14 years volunteering in the tuberous sclerosis complex (TSC) community.  

Her professional background is business management. Experiencing the need to advocate educationally and medically for her family when their journey began with TSC two decades ago, Shelly realized she wanted to work alongside and empower TSC families by providing resources and support to advocate for themselves and their children to secure the services they are entitled to receive and to realize their full potential—no matter how complex their journeys are to get there. Shelly completed the Special Education Advocate Training 1.0 and 2.0 through the Council of Parent Attorneys and Advocates.  

Shelly assists families – whether newly diagnosed or in need of educational advocacy, transition resources or peer support and provides tremendous insight as a parent having walked the TSC journey – twice. Her drive and passion have been fueled by her two children with TSC, Ashlin and Mason, and her daughter, Mikenna. She plans and implements educational webinars and Regional TSC and LAM Conferences and led the hugely successful 2022 World TSC Conference.  

In her free time, she enjoys running, yoga, spending time with family and her three dogs. 


Back to Our Team