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About the TSC Alliance
The TSC Alliance is an internationally recognized nonprofit that does everything it takes to improve the lives of people with TSC. We drive research, improve quality care and access and
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Healthcare Providers
Tuberous sclerosis complex (TSC) is a complicated disorder that requires lifelong care from a variety of specialists. The TSC Alliance provides the resources below to connect healthcare providers with TSC
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Volunteer
Champion our cause: Join the TSC Alliance volunteer movement! The tuberous sclerosis complex (TSC) community is the TSC Alliance’s strongest ally. We rely on our dedicated volunteers to help drive
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Connect with a Support Navigator
Our professional Support Navigators can help guide you along your unique journey. They can help answer your questions, process, and understand your diagnosis, help find TSC recognized specialists, and discuss
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Adult support
Being diagnosed with tuberous sclerosis complex (TSC) can cause significant challenges within your adult life regardless of when you first received your diagnosis. The TSC Alliance is here to help.
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Educational support
The TSC Alliance recognizes parents and young adults often face many educational and school-related difficulties. The first step in becoming an advocate is understanding your child’s legally protected rights. The
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Bcureful travel & lodging assistance
The Bcureful Travel Fund® at the TSC Alliance underwrites the TSC Travel and Lodging Patient Assistance Program, which is administered by the National Organization for Rare Disorders (NORD). This travel
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Living with TSC
Tuberous sclerosis complex (TSC) is a complicated disease. Some people live with few symptoms while others need continual support. Most people with TSC live normal lifespans. Although there is no
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Medication resources
While facing barriers to medication can be frustrating, there are resources available to help you navigate these challenges. Below you’ll find a list of patient assistance programs to help cover
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Caregiver Mental Health
Being a caregiver can be equally rewarding and overwhelming at the same time – it is completely normal to feel this way. Many caregivers start this journey as parents, yet