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Seizures and TSC: your data matters!

The TSC Alliance and Seizure Tracker™ have joined together to advance epilepsy research. With your help, we can connect important seizure and clinical information to enable researchers to improve outcomes and

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Seizure clusters & status epilepticus

Epilepsy is a very common manifestation of tuberous sclerosis complex (TSC), occurring in 84% of patients registered in the TSC Alliance Natural History Database. Potential complications of epilepsy include seizure

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Epilepsy treatment options

Epilepsy is a common manifestation of tuberous sclerosis complex (TSC). More than 80% of individuals with TSC will have seizures at some point during the journey, most often beginning in

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Infantile spasms

Infantile spasms or epileptic spasms are severe seizure disorders that may affect infants with tuberous sclerosis complex (TSC). About 30% of children with TSC may start experiencing these seizures. The

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Epilepsy in adults with TSC

People with tuberous sclerosis complex (TSC) face many medical issues as they age, including new-onset seizures or ongoing epilepsy. Studies indicate more than 80% of individuals with TSC will develop

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Epilepsy/seizure disorders

One of the most common neurological features of tuberous sclerosis complex (TSC) are seizures. This feature occurs in 84% of individuals with TSC. In some cases, seizures can start as

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Surveillance & treatment

The following table provides guidelines to help you and your loved one manage the treatment of TSC. Additional information for your physician is available here. Surveillance & management recommendations for TSC

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What is TSC?

Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. Despite its complexity,