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Preclinical research
The TSC Alliance and the Preclinical Consortium have been instrumental partners in establishing the preclinical models and data necessary for development of our candidate therapeutic. The historical data sets, knowledge
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TSC Biosample Repository & Natural History Database
The TSC Natural History Database captures clinical data provided by physicians to document the impact of the disease on a person’s health over his or her lifetime. The TSC Biosample
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Seizures and TSC: your data matters!
The TSC Alliance and Seizure Tracker™ have joined together to advance epilepsy research. With your help, we can connect important seizure and clinical information to enable researchers to improve outcomes and
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Seizure clusters & status epilepticus
Epilepsy is a very common manifestation of tuberous sclerosis complex (TSC), occurring in 84% of patients registered in the TSC Alliance Natural History Database. Potential complications of epilepsy include seizure
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Epilepsy treatment options
Epilepsy is a common manifestation of tuberous sclerosis complex (TSC). More than 80% of individuals with TSC will have seizures at some point during the journey, most often beginning in
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Infantile spasms
Infantile spasms or epileptic spasms are severe seizure disorders that may affect infants with tuberous sclerosis complex (TSC). About 30% of children with TSC may start experiencing these seizures. The
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Epilepsy in adults with TSC
People with tuberous sclerosis complex (TSC) face many medical issues as they age, including new-onset seizures or ongoing epilepsy. Studies indicate more than 80% of individuals with TSC will develop
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Epilepsy/seizure disorders
One of the most common neurological features of tuberous sclerosis complex (TSC) are seizures. This feature occurs in 84% of individuals with TSC. In some cases, seizures can start as
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Surveillance & treatment
The following table provides guidelines to help you and your loved one manage the treatment of TSC. Additional information for your physician is available here. Surveillance & management recommendations for TSC
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What is TSC?
Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. Despite its complexity,