Operating Board of Directors

The TSC Alliance Board of Directors has general oversight, fiduciary, policy development and ambassadorial responsibilities. The board develops and approves strategic plans that define the framework that guides the TSC Alliance staff in daily activities, moving the organization closer to achieving its mission.

Decision-making is led by the Executive Committee, which is composed of the Chair, Vice Chair (Chair Elect), Secretary, Treasurer and Immediate Past Chair. Standing committees include Finance, Audit, Compensation and Governance. Other committees include Outreach, Government Relations, Global Relations and Science/Medical.

Operating Board Members

Brittany Smith, Chair
Kenilworth, IL

Kristi Lengyel, Vice Chair
Los Angeles, CA

Mark Spotts, Treasurer
Prior Lake, MN

Jonathan Goldstein, Secretary
New York, NY

Paul Waxlax, Immediate Past Chair
Denver, CO

Derek Bauer, MD
Rochester, NY

Angélique Bordey, PhD
New Haven, CT

Frances Briones
Hemet, CA

Chip Burkhalter
Alexandria, VA

Lisa Carlton, PhD
Washington, DC

Mark Carroll
Saratoga, CA

Sara Chieffo
Washington, DC

Danielle Garcia Clark
San Antonio, TX

Andrew Duffy, International Partner Member
Toronto, ON

Julian Gangolli
Santa Ynez, CA

Steven Garland, CPA
Scottsdale, AZ

Tanjala Gipson, MD
Cordova, TN

Rich Gollub, CPA
Silver Spring, MD 

Elizabeth P. Henske, MD
Cambridge, MA

Lesley Holmes, JD
Los Angeles, CA

Shafali Jeste, MD
Encino, CA

David Johnston
Raleigh, NC

Jessica Krefting, BSN, RN
Madison, AL

Susan Lamont, PhD
Ames, IA

Patroski Lawson, MSP
Washington, DC

Noor Panjwani
Dallas, TX

Joshua Samuels, MD, MPH
Houston, TX
 

Megan Self, BS, BSN, RN
Bradenton, FL 

Andrew Sperling
Chevy Chase, MD 

TSC Alliance Endowment Fund Board of Directors

The TSC Alliance Endowment Fund is a separate fiduciary organization specifically chartered to receive gifts that will be invested to generate an income stream to help fulfill the mission of the TSC Alliance. The Endowment Fund will ensure the TSC Alliance has an ongoing source of funding to better serve those touched by tuberous sclerosis complex through research, support services and education.

Endowment Board Members

Rita DiDominico, Chair
Staten Island, NY

Darren Miles, Secretary
Minneapolis, MN

Mark Schaengold, Treasurer
Cincinnati, O
H

Bryce Carroll
Oakland, CA 

Timothy Dills
Great Falls, VA

David Fitzmaurice
Wyckoff, NJ

David Johnston
Raleigh, NC

Larry O’Friel
Staten Island, NY

Brittany Smith, Chair
Kenilworth, IL

Corporate Advisory Board

The TSC Alliance’s Corporate Advisory Board includes a group of dedicated professionals from a variety of industries who provide guidance and strategic support and act as advisors to the President and CEO. This board will be called upon to offer assistance in the areas of business planning and operational growth, marketing and public relations, development and fundraising, infrastructure, technology and human resources.

Corporate Advisory Board Members

Wilfred Cooper, Sr., Honorary Chair
Chairman
WNC & Associates

Julianne Moore, Honorary Chair

Martina Bebin, MD, MPA
Co-Director
University of Alabama TSC Clinic

Matt Bolger
Director of information Technology
Michigan State Police

David Coit
Managing Director
North Atlantic Capitol

Peter B. Crino, MD, PhD
Chair, Department of Neurology
University of Maryland School of Medicine

Rita DiDomenico
Vice President
MUFG Bank

Rusty Field
CEO and President
Evenstad Estates

David Fitzmaurice
Director of Business Development
Sealed Air

Gail Gershon

William Joseph

Ken Kocher
Former President
LIDS Sports Group

Laura S. Lubbers, PhD
Chief Scientific Officer
CURE Epilepsy

Ted Mastroianni

David Michaels
Senior Vice President
Wells Fargo Bank, NA

Darren Miles

MaryJane Mudd
Executive Director
East Harris County Manufacturers Association

John P. Nicholson, MD, MBA
Clapboard Ridge Consulting, LLC

Sean C. Nolan
Chairman
Encoded Therapeutics, Inc.

Rebecca Anhang Price, PhD

Henry Shapiro
Chairman
MarketCast Group

Judy Shoulak
Owner
Relatively Speaking

John Thorpe Richards, Jr.
Bogorad and Richards, PLLC

Marc Shapses
Executive Managing Director
Savills Studley