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Participate in research
The tuberous sclerosis complex (TSC) community is pivotal to advancing research. When you enroll in a clinical trial, share your medical data, donate biosamples or give voice to your lived
TSC Alert
Early Career Researcher Summit
Registration is now open for Reaching the Peak: A Science & Technology Career Summit, Research!America’s summit for early career researchers, on June 30, 2021, 11-6 pm ET.
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Reproductive and Perinatal Health Initiative – Participate in the survey here!
The TSC Alliance has launched a Reproductive and Perinatal Health Initiative committed to improving care provided to women with TSC before and during pregnancy. If you are a woman or
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TSC Community, help us identify the most important aspects of TSC!
Currently, a lot of outcomes are being measured that are not always relevant or impactful to families and individuals with TSC. Additionally, when many different outcomes are being measured, results
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TSC Alliance Clinical Research Network
In 2025, the TSC Alliance launched the TSC Clinical Research Network (CRN) with the TSC Alliance serving as a central hub for patient-focused clinical research, with collaborations amongst clinical researchers, industry partners, and the TSC community.
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TSC Alliance Staff Updates
The TSC Alliance® announces several staff updates. On January 1, 2026, Dean J. Aguiar, PhD, was promoted to Executive Vice President, Translational Research. Dean Aguiar, PhD, joined the TSC Alliance in November 2018 with more than
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2026 Marine Corps Marathon
Team TSC is headed to the Marine Corps Marathon! We’re thrilled to announce that Team TSC is heading to the 2026 Marine Corps Marathon on October 25, and we’ve officially
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Step Forward to Cure TSC® – Chicago, IL
Join us in Chicago, IL on Sunday, April 26, 2026, at Lake Shore Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Chicago,
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Step Forward to Cure TSC® – DFW, TX
Join us in Dallas-Fort Worth, TX on Sunday, May 3, 2026, at Doubletree Ranch Park for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—all united by
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Step Forward to Cure TSC® – Houston, TX
Join us in Sugar Land, TX on Saturday, April 11, 2026, at Brazos River Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Houston,