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2024 Regional TSC Conference Series – Chapel Hill, NC

The Friday Conference Center Friday Center Drive, Chapel Hill, NC, United States

One-day Regional Conferences feature leading local researchers and clinicians specializing in TSC. Topics will include sessions across the lifespan of TSC, including: Research updates, including upcoming clinical studies and trials for TSC Behavior and mental health Genetics and gene therapy Women’s health issues Seizure types and treatments Kidney involvement and treatment options See a draft

$10

Ask an Advocate open forum

Zoom

The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER

TSC Canada ST Educational Series for Caregivers/Families and Persons living with TSC – Second Session

Google Meet

Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) is hosting an educational series to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). Register for the second session, What is routine follow-up in TSC: Across the ages, led by Maria Zak (MN, NP-pediatrics at SickKids) and Dr. Mark Keezer

Event Series Tri-State Area Community Gathering

Tri-State Area Community Gathering

Bethel Public Library 189 Greenwood Ave., Bethel, CT, United States

Join TSC parent Emily Docktor, LCSW, for an informal, in-person meet up! This series of gatherings will provide an opportunity to talk about building connections, supporting self and others, parent-child relationships, siblings and balance, and resentment/forgiveness and self-care. These gatherings will take place every other week on Wednesday through the summer at the Bethel Public Library in Bethel, CT from 6-7:30 pm. Here’s the full schedule: Wednesday, June 26 Wednesday, July 10 Wednesday, July 24