Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
Join the TSC Alliance for the third webinar of the 2025 Transition Webinar Series! This webinar will take place on Tuesday, June 17, 2025 at 7 pm ET. This webinar will feature Kelly Piacenti, MA, ChSNC, a Chartered Special Needs Consultant® from MassMutual SpecialCare and Jerry L. Hulick, CLU, ChFC, ChSNC, CLTC from The Washington Group Special Care Planning Team to
Join the Children’s Mercy Tuberous Sclerosis Complex (TSC) Clinic in Kansas City, MO for a TSC Education Day on Saturday, June 21, 2025 at the Kansas City Zoo from 9 am to 2 pm CT. This event is designed to provide support, education and resources to individuals and families affected by TSC, as well as
Mark your calendars for the 2025 TSC International Research Conference, hosted by the TSC Alliance, scheduled for June 26-28, 2025, at the Bethesda North Marriott in Bethesda, MD. The conference will focus on structured, collaborative discussions on groundbreaking research topics. REGISTER HERE Conference Co-Chairs: Shafali Spurling Jeste, MD, Chief, Division of Neurology, Co-Director, Neurological Institute, Children’s
Join the Pediatric Epilepsy Surgery Alliance for a special webinar with Dr. Shafali Jeste, Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery, on Monday, June 30, 2025, at 2 pm PT. This webinar is co-hosted by the TSC Alliance, LGS Foundation, and CHADD’s National Resource Center on ADHD. Many kids with drug-resistant epilepsy (DRE) also have challenges with learning, behavior, or attention—but parents are
Join us on August 11 at 8 pm ET for our Ask an Advocate call featuring the second half of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will explore how sensory processing impacts educational outcomes and discuss interventions tailored to different sensory processing types. Learn practical strategies to support student participation
Join us fro the next webinar in the 2025 Transition Webinar Series on Thursday August 21 at 7 pm ET. Our next webinar in our 2025 Transition Webinar Series will be Navigating Social Security Benefits for Individuals with Disabilities. Join us for an informative and practical session designed to support families in understanding and accessing
This one-day TSC Regional Conference will take place on Saturday, September 6, 2025 at the Iowa Memorial Union at the University of Iowa in Iowa City, IA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals, Nobelpharma
Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The September Topic Call will feature Heather Radtke, MS, CGC from the TSC Alliance providing an overview of the Reproductive and Perinatal Health Initiative
Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The October call will be an open forum format, providing an opportunity to meet with other adults living with TSC and ask questions valuable