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  • Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery

    Join the Pediatric Epilepsy Surgery Alliance for a special webinar with Dr. Shafali Jeste, Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery, on Monday, June 30, 2025, at 2 pm PT. This webinar is co-hosted by the TSC Alliance, LGS Foundation, and CHADD’s National Resource Center on ADHD. Many kids with drug-resistant epilepsy (DRE) also have challenges with learning, behavior, or attention—but parents are

  • Ask an Advocate

    Join us on August 11 at 8 pm ET for our Ask an Advocate call featuring the second half of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will explore how sensory processing impacts educational outcomes and discuss interventions tailored to different sensory processing types. Learn practical strategies to support student participation

  • TSC Regional Conference – Iowa City, IA

    Iowa Memorial Union at the University of Iowa 125 N. Madison Street, Iowa City, IA, United States

    This one-day TSC Regional Conference will take place on Saturday, September 6, 2025 at the Iowa Memorial Union at the University of Iowa in Iowa City, IA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals, Nobelpharma

  • Adult Topic Call

    Virtual Event

    Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The September Topic Call will feature Heather Radtke, MS, CGC from the TSC Alliance providing an overview of the Reproductive and Perinatal Health Initiative

  • Ask an Advocate

    Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.

  • Adult Topic Call

    Virtual Event

    Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The October call will be an open forum format, providing an opportunity to meet with other adults living with TSC and ask questions valuable

  • 34th Annual Cookin’ Up a Cure

    Knights of Columbus 723 Badger Avenue, South Milwaukee, WI, United States

    Thirty-four years ago, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: "Your child has Tuberous Sclerosis Complex." Together, they fought Joey's battle with courage and love. Sadly, just over a year after his diagnosis, Joey’s little heart could no longer carry

  • 2025 TCS New York City Marathon

    Featured
    New York City Drum Road, Staten Island, New York, United States

    The TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday, November 2, 2025. These passionate individuals will take to the streets of NYC, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis

  • TSC Regional Conference – Los Angeles, CA

    UCLA Meyer and Renee Luskin Conference Center 425 Westwood Plaza, Los Angeles, CA, United States

    This one-day TSC Regional Conference will take place on Saturday, November 8, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles, CA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is

  • Epilepsy Awareness Day @ Disneyland® Resort

    Disneyland Hotel Convention Center 1150 Magic Way, Anaheim, CA, United States

    Join us for the 13th Annual Epilepsy Awareness & Education Expo. 📍 Disneyland Hotel, Anaheim, CA 📅 November 10–11, 2025 This FREE two-day event brings together the largest gathering of epilepsy professionals, advocates and families in the country. Come explore: 100+ exhibitors including top epilepsy centers & providers Cutting-edge anti-seizure meds and technologies National support