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  • Ask an Advocate

    Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.

  • Adult Topic Call

    Virtual Event

    Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The October call will be an open forum format, providing an opportunity to meet with other adults living with TSC and ask questions valuable

  • 34th Annual Cookin’ Up a Cure

    Knights of Columbus 723 Badger Avenue, South Milwaukee, WI, United States

    Thirty-four years ago, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: "Your child has Tuberous Sclerosis Complex." Together, they fought Joey's battle with courage and love. Sadly, just over a year after his diagnosis, Joey’s little heart could no longer carry

  • 2025 TCS New York City Marathon

    Featured
    New York City Drum Road, Staten Island, New York, United States

    The TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday, November 2, 2025. These passionate individuals will take to the streets of NYC, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis

  • TSC Regional Conference – Los Angeles, CA

    UCLA Meyer and Renee Luskin Conference Center 425 Westwood Plaza, Los Angeles, CA, United States

    This one-day TSC Regional Conference will take place on Saturday, November 8, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles, CA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is

  • Epilepsy Awareness Day @ Disneyland® Resort

    Disneyland Hotel Convention Center 1150 Magic Way, Anaheim, CA, United States

    Join us for the 13th Annual Epilepsy Awareness & Education Expo. 📍 Disneyland Hotel, Anaheim, CA 📅 November 10–11, 2025 This FREE two-day event brings together the largest gathering of epilepsy professionals, advocates and families in the country. Come explore: 100+ exhibitors including top epilepsy centers & providers Cutting-edge anti-seizure meds and technologies National support

  • TS Canada ST Educational Series – Transitioning into adult care for TSC patients/promoting reproductive health and well-being in adolescents with TSC

    TS Canada ST 2025 Educational Series

    Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.

  • Adult Topic Call

    Virtual Event

    Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The November Topic Call will feature Dean Aguiar, PhD, Vice President of Translational Research at the TSC Alliance. Dean will provide an update on

  • Ask an Advocate

    Join us on Monday, December 8, 2025 at 8 pm ET for an Ask an Advocate session. Topic: Open Forum. Register for the December 8, 2025 Ask an Advocate session here.

  • 2025 Transition Webinar Series – The Psychological impact on Caregivers

    Join Michele D. Della Costa, MS, LMFT-QS, on Thursday, December 18, 2025 at 7:00 pm ET as she leads a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. This conversation will offer practical advice on navigating the mental burden of managing care for a loved one with TSC, including how

  • Ask an Advocate – February 2026

    Join us for an Ask an Advocate session! Join Wendy Anderson, TSC Alliance Education Peer Mentor, on Monday, February 9, 2026, at 8 pm ET as she leads a focused and empowering conversation on how families impacted by TSC and other disabilities can engage in meaningful policy advocacy at the local, state, and federal levels.

  • Adult Topic Call – March 2026

    The March topic call will take place on Wednesday, March 18, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. REGISTER HERE