Join us on August 11 at 8 pm ET for our Ask an Advocate call featuring the second half of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will explore how sensory processing impacts educational outcomes and discuss interventions tailored to different sensory processing types. Learn practical strategies to support student participation
Join us fro the next webinar in the 2025 Transition Webinar Series on Thursday August 21 at 7 pm ET. Our next webinar in our 2025 Transition Webinar Series will be Navigating Social Security Benefits for Individuals with Disabilities. Join us for an informative and practical session designed to support families in understanding and accessing
This one-day TSC Regional Conference will take place on Saturday, September 6, 2025 at the Iowa Memorial Union at the University of Iowa in Iowa City, IA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals, Nobelpharma
Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The September Topic Call will feature Heather Radtke, MS, CGC from the TSC Alliance providing an overview of the Reproductive and Perinatal Health Initiative
Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The October call will be an open forum format, providing an opportunity to meet with other adults living with TSC and ask questions valuable
Thirty-four years ago, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: "Your child has Tuberous Sclerosis Complex." Together, they fought Joey's battle with courage and love. Sadly, just over a year after his diagnosis, Joey’s little heart could no longer carry
The TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday, November 2, 2025. These passionate individuals will take to the streets of NYC, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis