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Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.
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Virtual Event
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Virtual Event
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The October call will be an open forum format, providing an opportunity to meet with other adults living with TSC and ask questions valuable |
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TARGET AUDIENCE This Symposium is aimed to the patients and families, as well as clinicians and health professionals (doctors, nurses, researchers). FORMAT Since the symposium is intented to be a place for exchanges it will be in person only. REGISTRATION FEE Registration fee for everyone: $25 Register here PROGRAM October 16: for patients and families In
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Thirty-four years ago, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: "Your child has Tuberous Sclerosis Complex." Together, they fought Joey's battle with courage and love. Sadly, just over a year after his diagnosis, Joey’s little heart could no longer carry |
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Featured
The TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday, November 2, 2025. These passionate individuals will take to the streets of NYC, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis |
Featured