The second pre-conference webinar, Consensus Guidelines: What You Need to Know, will take place on Monday, May 11, 2026, at 1:00 pm ET , and feature moderator Chris Kingswood, MD and presenters Darcy Krueger MD, PhD; and Hope Northrup, MD. This webinar will provide an overview of the latest Consensus Guidelines for the diagnosis, surveillance, and management of TSC. Developed by international
Join us in Tampa, FL on Saturday, May 16, 2026, at the Shanna and Bryan Glazer JCC for Step Forward to Cure TSC®! This beautiful venue provides the perfect backdrop for a day dedicated to hope, strength, and community. Whether you are a long-time supporter or joining us for the first time, we can’t wait to
Join us in Perry, OH on Saturday, May 16, 2026 at Perry High School for Step Forward to Cure TSC®! This Northern Ohio walk is easily accessible for our Ohio, Michigan, Indiana, and surrounding communities, making it a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. 10:00 am - Registration begins
Join us in Yuba City, CA on Saturday, May 16, 2026, at Dibra S. Bains Park for Step Forward to Cure TSC®! This Northern California walk is a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. 10:00 am - Registration begins 11:00 am - Walk begins Whether you
*DATE CHANGE* Join us in West Chester, PA on Saturday, May 16, 2026, at East High School for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—including many traveling from out of state—all united by hope, connection, and the drive to make a difference. Whether you join us in
Join us in Brookfield, CT on Saturday, May 16, 2026, at Cadigan Park for Step Forward to Cure TSC®! This walk brings together the TSC community from Connecticut—united by hope, connection, and the drive to make a difference. Whether you join us in person or participate virtually, your presence matters. 11:00 am - Registration begins 12:00 pm
The May topic call will take place on Wednesday, May 20, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. REGISTER HERE
The third pre-conference webinar, Seizure Types in TSC, will take place on Wednesday, June 3, 2026, at 12:00 pm ET, and will address seizure types across the lifespan. This webinar will feature moderator Shelly Meitzler and presenters Sam Amin, MBCHB, MRCPCH, MSc, PhD and E. Martina Bebin, MD, MPA. REGISTER HERE
Join us in Murray, UT on Saturday, June 6, 2026, at Wheeler Farm Outdoor Education Center for Step Forward to Cure TSC®! This walk brings together the TSC community from Utah—all united by hope, connection, and the drive to make a difference. Whether you join us in person or participate virtually, your presence matters. 10:00 am
Join us on Monday, June 15, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the June 15, 2026 Ask an Advocate session here.
The fourth pre-conference webinar, Genetics Made Simple, will take place on Wednesday, June 17, 2026, at 8:00 pm ET, and feature moderator Danielle Nolan, MD and presenter Hope Northrup, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens, why it varies from person to person, and what this
The fifth and final pre-conference webinar, mTOR Inhibitors: Past, Present and Future, will take place on Tuesday, June 30, 2026, at 8:00 pm ET, and feature moderator Elizabeth Skufca and presenters David Ritter, MD, PhD and Michael Wong, MD, PhD. This webinar will explore the evolution of mTOR inhibitors in treating TSC, from their discovery to current clinical use in