Are you providing care to a patient with a suspected tuberous sclerosis complex (TSC) diagnosis? Here are five things you need to know:
- Early diagnosis and management are critical to better outcomes. Download the current Diagnosis, Surveillance and Management Recommendations here.
- TSC causes tumors to form in many different organs, requiring care from a variety of specialists. The TSC Alliance has offered TSC Clinic designations to the institutions listed here to identify where comprehensive clinical care for people with TSC is available.
- TSC is a complicated disorder that requires lifelong care. Resources including key medical publications and CME opportunities are available on our website.
- There is hope for people with TSC. Some live with few symptoms while others need continual support. Additionally, there are many opportunities for patients to enroll in clinical trials to help advance new therapies.
- The TSC Alliance is here to help. If you have any questions, contact TSC Alliance Director, Medical Affairs Ashley Pounders, MSN, FNP-C, at apounders@tscalliance.org or by calling 1-800-225-6872.
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