Newly Diagnosed

Get Support Now

In your journey with tuberous sclerosis complex (TSC), you are not alone.

Get Immediate Support

For those newly diagnosed with tuberous sclerosis complex or have a medical question, contact Ashley Pounders, MSN, FNP-BC, Director of Medical Affairs at 1-800-225-6872 or 301-562-9890 or email her at apounders@tscalliance.org

The TSC Alliance is Here to Help

Regardless of the age at diagnosis, the journey you take with tuberous sclerosis complex (TSC) can certainly be daunting; many people say having TSC is like walking through a minefield, because you never know when another symptom will arise.  But you can rest assured the TSC Alliance and our volunteers will always be available when you need information, support or just a sympathetic ear.

For additional information, you may want to download our comprehensive booklet, An introduction to tuberous sclerosis complex.

If your healthcare provider needs more information about the latest in TSC diagnosis, surveillance and management, please have them contact Ashley Pounders, MSN, FNP-C, TSC Alliance Director, Medical Affairs at apounders@tscalliance.org.