
Join the TSC Alliance for five webinars that will help you build a strong foundation of knowledge ahead of the TSC World Conference, taking place July 30-August 1, 2026. Participation is not limited to conference attendees. You are welcome to join the webinar series even if you do not plan to attend the 2026 TSC World Conference. We encourage you to join any sessions that may be helpful for yourself or those you support.
REGISTER HERE
Learn more about the webinar series:
TSC 101 for Newly Diagnosed Individuals or Families
Wednesday, April 29, 2026, at 8:00 pm ET
The first pre-conference webinar, TSC 101 for Newly Diagnosed Individuals or Families, featuring moderator Jennifer McCrave, RN, BSN, CNRN and presenters Raj Rajaraman, MD, MS and Elizabeth Thiele, MD, PhD, will provide an overview of TSC and the importance of building a strong network of care.
Consensus Guidelines: What You Need to Know
Monday, May 11, 2026, at 1:00 pm ET
The second pre-conference webinar, Consensus Guidelines: What You Need to Know, featuring moderator Chris Kingswood, MD and presenters Darcy Krueger MD, PhD; and Hope Northrup, MD, provides an overview of the latest Consensus Guidelines for the diagnosis, surveillance, and management of TSC. Developed by international experts and updated regularly, these guidelines offer critical, evidence-based recommendations to help individuals with TSC receive comprehensive and consistent care.
Seizure Types in TSC
Wednesday, June 3, 2026, at 12:00 pm ET
The third pre-conference webinar, Seizure Types in TSC, will address seizure types across the lifespan, and feature moderator Shelly Meitzler and presenters Sam Amin, MBCHB, MRCPCH, MSc, PhD and E. Martina Bebin, MD, MPA.
Genetics Made Simple
Wednesday, June 17, 2026, at 8:00 pm ET
The fourth pre-conference webinar, Genetics Made Simple, featuring moderator Danielle Nolan, MD and presenter Hope Northrup, MD, breaks down the basics of TSC genetics making it easier to understand how TSC happens, why it varies from person to person, and what this means for families and individuals.
mTOR Inhibitors: Past, Present and Future
Tuesday, June 30, 2026, at 8:00 pm ET
The fifth and final pre-conference webinar, mTOR Inhibitors: Past, Present and Future, featuring moderator Elizabeth Skufca and presenters David Ritter, MD, PhD and Michael Wong, MD, PhD, will explore the evolution of mTOR inhibitors in treating TSC, from their discovery to current clinical use in managing SEGAs, kidney tumors, epilepsy, skin, and more. Learn about side effects, long-term outcomes, and what the future holds—including new research and emerging therapies.
REGISTER HERE
Join us at the 2026 TSC World Conference, taking place July 30-August 1, 2026 in Aurora, CO. Learn more at www.tscalliance.org/worldconference.
Please email worldconference@tscalliance.org if you have any questions.