Join us for the 2026 TSC World Conference Webinar Series!

News

Join the TSC Alliance for five webinars that will help you build a strong foundation of knowledge ahead of the TSC World Conference, taking place July 30-August 1, 2026. Participation is not limited to conference attendees. You are welcome to join the webinar series even if you do not plan to attend the 2026 TSC World Conference. We encourage you to join any sessions that may be helpful for yourself or those you support.

Learn more about the webinar series: 

mTOR Inhibitors: Past, Present and Future 

Tuesday, June 30, 2026, at 8:00 pm ET 

The fifth and final pre-conference webinar, mTOR Inhibitors: Past, Present and Future, featuring moderator Elizabeth Skufca and presenters David Ritter, MD, PhD and Michael Wong, MD, PhD, will explore the evolution of mTOR inhibitors in treating TSC, from their discovery to current clinical use in managing SEGAs, kidney tumors, epilepsy, skin, and more. Learn about side effects, long-term outcomes, and what the future holds—including new research and emerging therapies.  

REGISTER HERE 

 

This webinar is sponsored by Aeovian Pharmaceuticals

 

 

 

2026 TSC World Conference Webinar Series Recordings

TSC 101 FOR NEWLY DIAGNOSED INDIVIDUALS OR FAMILIES

The first pre-conference webinar, TSC 101 for Newly Diagnosed Individuals or Families, featuring moderator Jennifer McCrave, RN, BSN, CNRN and presenters Raj Rajaraman, MD, MS and Elizabeth Thiele, MD, PhD, provided an overview of TSC and the importance of building a strong network of care.

Watch the recording here:

Consensus Guidelines: What You Need to Know 

This webinar, moderated by Chris Kingswood, MD, featuring expert presenters Darcy Krueger MD, PhD and Hope Northrup, MD, provides an overview of the latest Consensus Guidelines for the diagnosis, surveillance, and management of TSC. Developed by international experts and updated regularly, these guidelines offer critical, evidence-based recommendations to help individuals with TSC receive comprehensive and consistent care.

Watch the recording here:

Seizure Types in TSC 

The third pre-conference webinar, Seizure Types in TSC, will address seizure types across the lifespan, and feature moderator Shelly Meitzler and presenters Sam Amin, MBCHB, MRCPCH, MSc, PhD and E. Martina Bebin, MD, MPA. 

Watch the recording here:

Genetics Made Simple 

The fourth pre-conference webinar, Genetics Made Simple, featuring moderator Danielle Nolan, MD and presenter Hope Northrup, MD, breaks down the basics of TSC genetics making it easier to understand how TSC happens, why it varies from person to person, and what this means for families and individuals. 

Watch the recording here:

Join us at the 2026 TSC World Conference, taking place July 30-August 1, 2026 in Aurora, CO. Learn more at www.tscalliance.org/worldconference.  

Please email worldconference@tscalliance.org if you have any questions.