TSC Alert
Grant Opportunity for TAND Research
In collaboration with the Fund Doctor & Mrs Charles Tournay-Dubuisson, the King Baudouin Foundation invites researchers worldwide to submit proposals related to TSC-Associated Neuropsychiatric Disorders (TAND). Up to €600,000 of
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Media
Media members and anyone seeking additional information about tuberous sclerosis complex or the TSC Alliance may direct inquiries to: Jaye Isham Chief Outreach Officer TSC Alliance 8737 Colesville Road, Suite
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Healthcare Providers
Tuberous sclerosis complex (TSC) is a complicated disorder that requires lifelong care from a variety of specialists. The TSC Alliance provides the resources below to connect healthcare providers with TSC
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LGBTQIA+ Community and TSC
The TSC Alliance supports people with tuberous sclerosis complex (TSC) who are LGBTQIA+; therefore, the unique and unfortunate challenges experienced in this community are just as important to address as
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Epilepsy in adults with TSC
People with tuberous sclerosis complex (TSC) face many medical issues as they age, including new-onset seizures or ongoing epilepsy. Studies indicate more than 80% of individuals with TSC will develop
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Diagnostic criteria
In 2021, the International Tuberous Sclerosis Complex Consensus Group reviewed prevalence and specificity of TSC-associated clinical manifestations and updated the TSC diagnostic criteria published in 2013. Clinical features of TSC
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Navigating TSC
From diagnosis through the lifespan learn how to proactively navigate medical and non-medical challenges for both those with TSC and their caregivers, while gaining insights from the lived experience of
2016-2018
2016: The TSC Alliance and The LAM Foundation jointly hosted Regional Conferences in Nashville, Seattle and Cleveland. The first-ever preventative epilepsy clinical trial in the United States launched, and the
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Fund research
Investment to Accelerate Research Although significant advances have been made in the diagnosis and treatment of TSC in just the last decade, the vast majority of children and adults with
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Additional Resources
Brain & Epilepsy Organizations Canadian Epilepsy Alliance: www.epilepsymatters.com International Bureau for Epilepsy: www.ibe-epilepsy.org Epilepsy Foundation: www.epilepsyfoundation.org BC Epilepsy Society: www.bcepilepsy.com Montreal Neurological Institute and Hospital: www.mni.mcgill.ca Childrens Neurology: www.childneurologysociety.org Epilepsy