TSC Alert

Grant Opportunity for TAND Research

In collaboration with the Fund Doctor & Mrs Charles Tournay-Dubuisson, the King Baudouin Foundation invites researchers worldwide to submit proposals related to TSC-Associated Neuropsychiatric Disorders (TAND). Up to €600,000 of



Media members and anyone seeking additional information about tuberous sclerosis complex or the TSC Alliance may direct inquiries to: Jaye Isham Chief Outreach Officer TSC Alliance 8737 Colesville Road, Suite


Healthcare Providers

Tuberous sclerosis complex (TSC) is a complicated disorder that requires lifelong care from a variety of specialists. The TSC Alliance provides the resources below to connect healthcare providers with TSC


LGBTQIA+ Community and TSC

The TSC Alliance supports people with tuberous sclerosis complex (TSC) who are LGBTQIA+; therefore, the unique and unfortunate challenges experienced in this community are just as important to address as


Epilepsy in adults with TSC

People with tuberous sclerosis complex (TSC) face many medical issues as they age, including new-onset seizures or ongoing epilepsy. Studies indicate more than 80% of individuals with TSC will develop


Diagnostic criteria

In 2021, the International Tuberous Sclerosis Complex Consensus Group reviewed prevalence and specificity of TSC-associated clinical manifestations and updated the TSC diagnostic criteria published in 2013. Clinical features of TSC


Navigating TSC

From diagnosis through the lifespan learn how to proactively navigate medical and non-medical challenges for both those with TSC and their caregivers, while gaining insights from the lived experience of


Additional Resources

Brain & Epilepsy Organizations Canadian Epilepsy Alliance: www.epilepsymatters.com International Bureau for Epilepsy: www.ibe-epilepsy.org Epilepsy Foundation: www.epilepsyfoundation.org BC Epilepsy Society: www.bcepilepsy.com Montreal Neurological Institute and Hospital: www.mni.mcgill.ca Childrens Neurology: www.childneurologysociety.org Epilepsy


Organ & Tissue Donation

Biosample Repository and Natural History Database The TSC Natural History Database collects clinical data used to document the impact of TSC on a person’s health, over his or her lifetime.