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Epilepsy in adults with TSC
People with tuberous sclerosis complex (TSC) face many medical issues as they age, including new-onset seizures or ongoing epilepsy. Studies indicate more than 80% of individuals with TSC will develop
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Diagnostic criteria
In 2021, the International Tuberous Sclerosis Complex Consensus Group reviewed prevalence and specificity of TSC-associated clinical manifestations and updated the TSC diagnostic criteria published in 2013. Clinical features of TSC
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Navigate TSC
From diagnosis through the lifespan learn how to proactively navigate medical and non-medical challenges for both those with TSC and their caregivers, while gaining insights from the lived experience of
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The TSC Alliance announces the retirement of Chief Scientific Officer Steven L. Roberds, PhD.
The TSC Alliance announces the retirement of Chief Scientific Officer Steven L. Roberds, PhD, at the end of December 2026. In preparation for this transition, effective January 1, 2026, Dean
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Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery
Join the Pediatric Epilepsy Surgery Alliance for a special webinar with Dr. Shafali Jeste, Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery, on Monday, June 30, 2025, at 2 pm PT. This webinar is co-hosted
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Update on TSCRP Funding
UPDATE (5/5/25) Dear TSC community members, The TSC Alliance and our grassroots volunteers across the country continue to strongly advocate for continued federal funding for tuberous sclerosis complex (TSC) research
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Adult Topic Call
We’re thrilled to announce that Jamie Capal, MD, Division Chief of Pediatric Neurology at the University of Rochester and Director of the newly established TSC Clinic, will be joining our Adult
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Additional Resources
Brain & Epilepsy Organizations Canadian Epilepsy Alliance: www.epilepsymatters.com International Bureau for Epilepsy: www.ibe-epilepsy.org Epilepsy Foundation: www.epilepsyfoundation.org BC Epilepsy Society: www.bcepilepsy.com Montreal Neurological Institute and Hospital: www.mni.mcgill.ca Childrens Neurology: www.childneurologysociety.org Epilepsy
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Organ & Tissue Donation
Biosample Repository and Natural History Database The TSC Natural History Database collects clinical data used to document the impact of TSC on a person’s health, over his or her lifetime.
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Research conferences
By bringing together researchers from different disciplines and representing basic, translational, and clinical science, TSC Alliance-hosted research conferences provide a truly unique space to foster collaborations, spark new ideas and