Please complete the form below to share your story of hope. By sharing your story, you help inspire hope in everyone with tuberous sclerosis complex (TSC) and let them know they are not alone. Your story is crucial to raise awareness and understanding of this disease, and your advocacy is helping create a future where affected can live their fullest lives.

Thank you!

Share your story of hope

Where do you live?

What's your connection to the person with TSC?
Please share the name of the person with TSC
Please share the name of the person with TSC
Sharing the birthday of the person with TSC allows us to group their story with people in the same age group.

Maximum file size: 52.43MB

Please upload photos in jpg or png format. Video clips should not exceed 2MB. Please try to include your child's last name as part of the file name (i.e., smith_photo_1.jpeg)
What was your journey to diagnosis like? What does life with TSC look like for you/your family?
I acknowledge by submitting my family story I hereby grant the TSC Alliance permission to use my family's story and my/my child's photo of which I have submitted without payment or other considerations to be used in any and all of its publications, including print or web-based publications, website and/or social media channels without notifying me. The TSC Alliance reserves the right to choose when and if to utilize a story of hope. I understand that once my image is posted online, the image can be downloaded by any computer user. Therefore, I agree to indemnify and hold harmless the TSC Alliance, its agents, volunteers, and employees from any claims. I irrevocably authorize the TSC Alliance to copy, edit, enhance, crop, or otherwise alter any photo/video/digital media for use in their materials. I also waive any rights for approval or inspection of any photo/video/digital media, including written or electronic copy, wherein my story or likeness appears. Additionally, I waive any right to royalties or other compensation arising from or related to the use of my story and photograph. I hereby hold harmless and release and forever discharge the TSC Alliance from all claims, demands and causes of action which I, my heirs, representatives, executors, administrators or any other persons acting on my behalf or on behalf of my estate have or may have by reason of this authorization. I have read this release before acknowledging below and I fully understand the contents, meaning and impact of this release. I understand that checking the box below and typing my name is equivalent to my signature. To request that your/your child’s photo(s) be removed from the website and/or other materials, please submit a written request by email to info@tscalliance.org.

Thank you to our TSC Navigator supporters:

Northstar Sponsors

  • Jazz Pharmaceuticals 
  • UCB, Inspired by patients. Driven by science.

Cardinal Sponsors

  • Neurelis
  • Nobel Pharma

Directional Sponsor

  • Noema