Shae was diagnosed with TSC when she was 3 months old. Over the years, she’s taken special education classes, including life skills courses focusing on transitioning into adulthood. She also had ABA, occupational, speech and physical therapies and took adaptive physical education classes.

Her mother Wendy urges others to “embrace treatments that bridge the cure, while still living like you are dying. Even after 20 years of dealing with this disease, we still have hope for something better, whatever that may be! Behind us – every step of the way – is the TSC Alliance, for which we are forever grateful.”

Thank you to our TSC Navigator supporters:

Northstar Sponsors

  • Jazz Pharmaceuticals 
  • UCB, Inspired by patients. Driven by science.

Cardinal Sponsors

  • Neurelis
  • Nobel Pharma

Directional Sponsor

  • Noema