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  • TSC Regional Conference – Iowa City, IA

    Iowa Memorial Union at the University of Iowa 125 N. Madison Street, Iowa City, IA, United States

    This one-day TSC Regional Conference will take place on Saturday, September 6, 2025 at the Iowa Memorial Union at the University of Iowa in Iowa City, IA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals, Nobelpharma

  • TS Canada ST Educational Series – mTOR inhibitors and their use in TSC

    Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.

  • Adult Topic Call

    Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The September Topic Call will feature Heather Radtke, MS, CGC from the TSC Alliance providing an overview of the Reproductive and Perinatal Health Initiative

  • Ask an Advocate

    Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.

  • Adult Topic Call

    Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The October call will be an open forum format, providing an opportunity to meet with other adults living with TSC and ask questions valuable

  • 2nd Canadian Symposium on Neurofibromatosis & Tuberous Sclerosis

    CHU Sainte-Justine 3175 Chemin de la Côte-Sainte-Catherine, Montréal, QC, Canada

    TARGET AUDIENCE This Symposium is aimed to the patients and families, as well as clinicians and health professionals (doctors, nurses, researchers). FORMAT Since the symposium is intented to be a place for exchanges it will be in person only. REGISTRATION FEE Registration fee for everyone: $25 Register here PROGRAM October 16: for patients and families In

    $25

  • 34th Annual Cookin’ Up a Cure

    Knights of Columbus 723 Badger Avenue, South Milwaukee, WI, United States

    Thirty-four years ago, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: "Your child has Tuberous Sclerosis Complex." Together, they fought Joey's battle with courage and love. Sadly, just over a year after his diagnosis, Joey’s little heart could no longer carry

  • Featured

    2025 TCS New York City Marathon

    New York City Drum Road, Staten Island, New York, United States

    The TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday, November 2, 2025. These passionate individuals will take to the streets of NYC, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis

  • TSC Regional Conference – Los Angeles, CA

    UCLA Meyer and Renee Luskin Conference Center 425 Westwood Plaza, Los Angeles, CA, United States

    This one-day TSC Regional Conference will take place on Saturday, November 8, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles, CA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is

  • Epilepsy Awareness Day @ Disneyland® Resort

    Disneyland Hotel Convention Center 1150 Magic Way, Anaheim, CA, United States

    Join us for the 13th Annual Epilepsy Awareness & Education Expo. 📍 Disneyland Hotel, Anaheim, CA 📅 November 10–11, 2025 This FREE two-day event brings together the largest gathering of epilepsy professionals, advocates and families in the country. Come explore: 100+ exhibitors including top epilepsy centers & providers Cutting-edge anti-seizure meds and technologies National support

  • TS Canada ST Educational Series – Transitioning into adult care for TSC patients/promoting reproductive health and well-being in adolescents with TSC

    Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.

  • Adult Topic Call

    Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The November Topic Call will feature Dean Aguiar, PhD, Vice President of Translational Research at the TSC Alliance. Dean will provide an update on