Cathy Evanochko, Chair
Cathy Evanochko is one of the founding board members of the organization. In the days prior to the availability of the Internet, an article about Cathy’s family in the February 1988 issue of Chatelaine magazine brought individuals together from across the country to create the Canadian organization Tuberous Sclerosis Canada Sclérose Tubéreuse. After taking a hiatus for a few years, Cathy rejoined the board in 2010. Cathy is a fierce advocate for TSC awareness, especially around the challenges adults with TSC face. Her daughter Kimberly was diagnosed with TSC in 1986 and with LAM in 2007.
Melissa Côté, Director
Melissa lives in Ottawa with her two daughters. Her connection to TSC began shortly after her daughter was diagnosed with TSC at the age of one. Determined to raise awareness and support families facing similar challenges, she has been a dedicated advocate and leader within the organization ever since. Melissa leverages both her professional expertise and personal experience to drive meaningful change, ensuring that individuals and families have access to the knowledge, resources, and support they need.
Kenneth Dawson, Director
Kenneth joined the TSCST board in 2020. He is a graduate from La Cité, a French college in Ottawa Ontario, with a certificate in protection et sécurité. His background is in security and customer service and now works as a security shift supervisor. Kenneth love to ski and spend time outdoors. Kenneth Dawson lives with TSC.
Andrew Duffy, Director
Andrew lives in Toronto and has been affiliated with TS Canada for more than 25 years. His eldest daughter Katie was diagnosed with Tuberous Sclerosis in 1996. Over the years he has had the pleasure of working with passionate advocates and researchers regarding Tuberous Sclerosis. The level of commitment never to ceases to amaze him. He is hopeful that one day we can all celebrate a cure for Tuberous Sclerosis.
Jennifer Flinn, Director
Jennifer has been on the board of directors since 2008. She holds a Doctorate in Education and serves as a school principal, where she is passionate about fostering inclusive and supportive learning environments. As a mother to a daughter with Tuberous Sclerosis Complex (TSC), Jennifer is deeply committed to raising awareness and supporting families affected by the condition. She is a member of the TANDem Consortium, working to advance research and understanding of TSC-Associated Neuropsychiatric Disorders (TAND). Jennifer is also the author of Princess Katie the Brave, a heartfelt children’s book inspired by her daughter’s journey, aimed at empowering children facing medical challenges.
Ray Marco, Director
Ray Marco from Dunmore, Alberta is a director with Tuberous Sclerosis Complex Canada (TSCST) since 1993. He has TSC type 1 himself and so do both of his now adult sons. Ray handles the TSCST Gmail and previously handled the English toll-free line. He participates in TSC research through the Natural History Database and the Bio Sample Repository, pulmonary (LAM) and TSC-Alzheimer’s research. Ray is a retired social worker and is open to any and all TSC-related inquiries. Ray and Cathy Marco have been married since 1980.