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Onboarding
TSC Alliance Community Leadership Manual & Policy Acknowledgment
The TSC Alliance Community Leadership Manual is your essential guide to successfully navigating your role as a volunteer leader. It outlines key policies, best practices and resources to help you lead effectively, foster community engagement and uphold the mission of the TSC Alliance.
To ensure all leaders are aligned with our standards and practices, we ask that you review the manual and complete the Policy Acknowledgment Form. This step confirms your commitment to our shared values and the principles outlined in the manual.
Click the links below to:
- Review the Current Leadership Manual for guidance and insights.
- Complete the Policy Acknowledgment Form to formalize your understanding and agreement.
Thank you for your dedication to making a difference in the lives of those impacted by TSC. Together, we are stronger!
Community Region map
Volunteer leadership roles
Community Region Lead
Partner with key leaders to connect individuals with local medical professionals, strengthen community ties and promote access to resources.
Community Region Co-Lead
Support the Region Lead by promoting medical access, hosting gatherings and providing local leadership.
Future Leaders
A one-year leadership role selected through an application process to engage in community development.
Government Action Lead
Build relationships with 10–15 U.S. federal representatives to advance advocacy efforts.
Clinic Ambassador/Medical Access Lead
Serve as a liaison with TSC Clinics, connecting families to resources and support.
Community Fundraising Lead
Organize and support fundraising efforts within the local TSC community.
Education Peer Mentor (EPM)
Trained specialists who help families navigate IEP or 504 processes for educational support.
Community Resource Lead
Guide families to state and local resources, including waivers, Medicaid and SSI.
Adult Support + Resource Lead
Support adults with TSC by fostering independence and connecting them to essential resources.
Community Support Lead
Expand community support networks and provide reliable information and resources to individuals and families.
Connect with the TSC Alliance Community Programs team
As a TSC Alliance Volunteer Leader, you’re driving meaningful change in the lives of individuals and families affected by TSC. Whether you need guidance, have questions or want to discuss a specific program or issue, our Community Programs Team is here to support you!
Book Time with Us
Schedule a meeting with a member of our team using our simple bookings link. We’re here to:
- Address specific challenges or issues you’re facing in your role.
- Provide insights and resources for a TSC Alliance program or initiative.
- Collaborate on ideas to enhance your community’s engagement and impact.
- Share best practices to help you lead with confidence.
Your leadership is vital to our mission, and we’re here to ensure you have the tools and support you need. Click below to book your session, and let’s tackle your goals together!
Frequently Asked Questions (FAQs)
Get answers to common questions and start your journey with confidence.