The TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday, November 2, 2025. These passionate individuals will take to the streets of NYC, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis
This one-day TSC Regional Conference will take place on Saturday, November 8, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles, CA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is
Join us for the 13th Annual Epilepsy Awareness & Education Expo. 📍 Disneyland Hotel, Anaheim, CA 📅 November 10–11, 2025 This FREE two-day event brings together the largest gathering of epilepsy professionals, advocates and families in the country. Come explore: 100+ exhibitors including top epilepsy centers & providers Cutting-edge anti-seizure meds and technologies National support
Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The November Topic Call will feature Dean Aguiar, PhD, Vice President of Translational Research at the TSC Alliance. Dean will provide an update on
Join us on Monday, December 8, 2025 at 8 pm ET for an Ask an Advocate session. Topic: Open Forum. Register for the December 8, 2025 Ask an Advocate session here.
Join Michele D. Della Costa, MS, LMFT-QS, on Thursday, December 18, 2025 at 7:00 pm ET as she leads a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. This conversation will offer practical advice on navigating the mental burden of managing care for a loved one with TSC, including how
Join us for an Ask an Advocate session! Join Wendy Anderson, TSC Alliance Education Peer Mentor, on Monday, February 9, 2026, at 8 pm ET as she leads a focused and empowering conversation on how families impacted by TSC and other disabilities can engage in meaningful policy advocacy at the local, state, and federal levels.
The March topic call will take place on Wednesday, March 18, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. REGISTER HERE
Run with the Team TSC in the TCS New York City Marathon on Sunday, November 1, 2026. COmplete the Interest form here
Join us in Sugar Land, TX on Saturday, April 11, 2026, at Brazos River Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Houston, TX area —all united by hope, connection, and the drive to make a difference. Whether you join us in person or participate virtually, your presence
Join us on Monday, April 13, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the April 13, 2026 Ask an Advocate session here.