Cardiac Rhabdomyomas in Pregnancy Survey

If you have had a fetus or child with cardiac rhabdomyoma associated with tuberous sclerosis complex (TSC) that was diagnosed during pregnancy, please consider completing a short 10-minute survey to help us learn more about your experience and improve information provided to families. Access the survey here.

RPH Preconception Survey

  • If you are a woman or a caretaker of a woman with TSC between the ages of 18 and 59 living in the US or Canada, please complete this short 10-minute survey to help us improve information provided to women with TSC.The survey is for women who have been pregnant, are currently pregnant, or have ever considered a pregnancy. Access the survey here.