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TSC Alert is a monthly e-newsletter for researchers and healthcare professionals. Subscribe to be the first to hear about our funding opportunities, research resources and conferences.

Funding Opportunity for SUDEP Research and Prevention

  |  Grants

In partnership with the American Epilepsy Society, Partners Against Mortality in Epilepsy (PAME) desires to fund ideas that advance SUDEP Summit priorities using the AES Seed Grants mechanism. This grant program offers funds to enable established investigators to pursue new and innovative lines of research, collaborations, and/or research methods. A goal of the seed grant program is to help these investigators lay the groundwork for another grant that would help continue research. Funds can be used for planning purposes and pilot projects. Specifically, PAME is interested in funding projects to advance clinical action priorities that will impact SUDEP prevention in the next... Read More

Join Our Peer-to-Peer Listserv for Healthcare Professionals

The TSC Alliance invites healthcare professionals affiliated with a TSC Clinic, TSC Center of Excellence, or University Medical Center to subscribe to our private listserv: p2p@lists.tscalliance.org. Its primary purpose is for members to pose TSC-related cases or questions to their peers for feedback. Members may also use the listserv to seek opportunities for collaboration on TSC-related projects. The listserv is monitored to ensure it is being used for appropriate communications. HOW TO SUBSCRIBE: Email apounders@tscalliance.org who will add you as a member. You should receive a “Welcome to list p2p” email from Groups List Manager p2p-request@lists.tscalliance.org to confirm your membership. Read More

TSC Biosample Seed Grants Available

  |  Grants

The TSC Alliance announces a funding opportunity for 2022 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository. The award may support laboratory supplies, personnel costs, services, or equipment necessary to conduct the proposed research.  Funds requested can be up to $20,000. Funding period is one year. The TSC Biosample Repository houses human biological materials linked to detailed clinical data in the TSC Natural History Database. High-quality biosamples and their associated clinical data enable researchers to discover biomarkers, establish human cell lines or tissue arrays for drug testing, and... Read More

We’re Hiring!

  |  News

The TSC Alliance is seeking a Science Project Manager to work with the Chief Scientific Officer to ensure all Science Department projects are progressing as planned toward milestones, goals and budgets. This person will be responsible for increasing the visibility of results and utilization by scientists of TSC Alliance research investments, contribute to planning and implementation of internal meetings and Innovation Workshops, and manage the TSC Alliance’s Research Grants and Fellowships Programs. A bachelor’s degree with at least five years’ experience, or an advanced degree with at least two years’ experience managing or coordinating multiple scientific projects in an academic,... Read More

MILED Trial Currently Enrolling Women with LAM

Please circulate the following to your patients with lymphangioleiomyomatosis (LAM): The MILED Trial is a new research study designed to answer the question of whether we should be starting sirolimus at low doses earlier in the course of disease before symptoms develop and while lung function is still normal. It is led by Dr. McCormack at the University of Cincinnati. The study is being conducted at several LAM Clinics located across the country in Cincinnati, Chicago, Atlanta, Seattle, and New York City. Reimbursement for travel is available for participants to attend study visits. Read More

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information in their TSC Natural History Database about individuals with TSC who were infected with COVID-19. TSC researchers will use this information to help determine how medications such as everolimus (Afinitor®, Zortress®) or sirolimus (Rapamune®) and other TSC conditions affect the risk of getting COVID-19 and its severity. If you or your loved one with TSC had COVID-19 confirmed by testing, please consider participating in the TSC Alliance Natural History Database.... Read More

Join Our Peer-to-Peer Listserv for Healthcare Professionals

The TSC Alliance invites healthcare professionals affiliated with a TSC Clinic, TSC Center of Excellence, or University Medical Center to subscribe to our private listserv: p2p@lists.tscalliance.org. Its primary purpose is for members to pose TSC-related cases or questions to their peers for feedback. Members may also use the listserv to seek opportunities for collaboration on TSC-related projects. The listserv is monitored to ensure it is being used for appropriate communications. Read More

FY22 TSCRP Funding Opportunities Now Available

The Tuberous Sclerosis Complex Research Program (TSCRP) is now accepting Pre-Applications for the fiscal year 2022 grant cycle. Three award mechanisms are available this year: Exploration – Hypothesis Development Award (up to $150,000 in direct costs over two years) Idea Development Award (up to $500,000 in direct costs over three years) Clinical Translational Research Award (up to $1,000,000 in direct costs over three years) The deadline to submit a Pre-Application Letter of Intent is June 30, 2021 at 5 pm Eastern. A brief summary of the three award mechanisms and submission requirements can be found here. The TSCRP is part of the... Read More