TSC Alert

TSC Alert is a monthly e-newsletter for researchers and healthcare professionals. Subscribe to be the first to hear about our funding opportunities, research resources and conferences.

Compound Nominations Open for Epilepsy Screening

The TSC Preclinical Consortium Steering Committee is seeking compound nominations for the Tsc1flox/flox;GFAP-Cre+ (GFAP-Tsc1-CKO) (epilepsy) mouse model. To nominate a compound, please submit the Compound Nomination form. The Preclinical Consortium Steering Committee sets the long-term goals, and Working Groups decide the best models and experimental design for drug testing and provide oversight for rigorous quality control and interpretation of results. Compounds are handled and tested by experienced contract research organizations, and data are shared among the Consortium. Any researcher may propose compounds for testing and benefit from the shared data. For-profit companies interested in nominating compounds and retaining confidentiality and ownership... Read More

TSC Biosample Seed Grants Available

The TSC Alliance announces a funding opportunity for 2023 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository. The award may support laboratory supplies, personnel costs, services, or equipment necessary to conduct the proposed research. Funds requested can be up to $20,000. Funding period is one year. The TSC Biosample Repository houses human biological materials linked to detailed clinical data in the TSC Natural History Database. High-quality biosamples and their associated clinical data enable researchers to discover biomarkers, establish human cell lines or tissue arrays for drug testing, and... Read More

Beckman Foundation funding opportunity for early-career researchers

The Arnold and Mabel Beckman Foundation has opened its 2023 Beckman Young Investigator (BYI) Letter of Intent. The Beckman Young Investigator (BYI) Program provides research support to the most promising young faculty members in the early stages of their academic careers (within the first four years of a tenure track position) in the chemical and life sciences, particularly to foster the invention of methods, instruments and materials that will open up new avenues of research in science. Please see their website for program eligibility, guidelines, and how to apply. Read More

Join Our Peer-to-Peer Listserv for Healthcare Professionals

The TSC Alliance invites healthcare professionals affiliated with a TSC Clinic, TSC Center of Excellence, or University Medical Center to subscribe to our private listserv: p2p@lists.tscalliance.org. Read More

TSC Biosamples Available at No Cost to Researchers

Are you looking for samples from TSC patients to use in your lab? The TSC Biosample Repository has a growing collection of samples tied to phenotypic data. In most cases, we can ship these samples at no charge to the investigator. Read More

Deadline Extended! Register now for the 2023 International TSC Research Conference

Registration is now open for the 2023 International TSC Research Conference: Fueling the Future, hosted by the TSC Alliance September 7-9, 2023 at the Omni Shoreham Hotel in Washington, DC. Early bird registration ends Monday, July 31 so register now to get the best rate. The conference will focus on structured, collaborative discussions on groundbreaking research topics. See a tentative agenda. Register Conference Co-Chairs Shafali Spurling Jeste, MD, Chief, Division of Neurology, Co-Director, Neurological Institute, Children’s Hospital, Los Angeles Rebecca Ihrie, PhD, Associate Professor Cell & Developmental Biology and Neurological Surgery, Vanderbilt University School of Medicine Early Career Researcher Symposium Co-Chairs Nicole McDonald, PhD, Assistant Clinical Professor, UCLA... Read More

Advanced Research Projects Agency for Health (ARPA-H) Funding Announcement

The mission of ARPA-H is to accelerate better health outcomes for everyone by supporting the development of high-impact solutions to society’s most challenging health problems. Awardees will develop groundbreaking new ways to tackle health-related challenges through highpotential, high-impact biomedical and health research. With a scope spanning the molecular to the societal, ARPA-H seeks proposals that aim to rapidly achieve better health outcomes across patient populations, communities, diseases, and health conditions, including in support of the Cancer Moonshot. Proposals are expected to use innovative approaches to enable revolutionary advances in science, technology, or systems. Read More

HOPE FOR RESEARCH | RESEARCH FOR HOPE

Hope Hynes Gallagher, daughter to Jennifer and Kenny, began having seizures when she was 6 and was diagnosed with TSC at the age of 11. On November 12, we will join together at Campiello to raise funds for the TSC Alliance to accelerate research in honor of Hope and the many individuals living with this life-altering disease. Click here to view the invitation: Research for Hope invitation Click here to view sponsorship details: Sponsorship Details Buy tickets and sponsorships here Read More

Seattle Regional TSC & LAM Conference

The TSC Alliance® and The LAM Foundation joined together once again to co-host four Regional TSC & LAM Conferences in 2023 aimed at individuals with tuberous sclerosis complex (TSC) and/or lymphangioleiomyomatosis (LAM) and their caregivers. These one-day conferences will feature local leading researchers and clinicians specializing in TSC and LAM. They will also include networking opportunities to meet other families and individuals from the area. Onsite childcare is not provided. Topics will include sessions across the lifespan of TSC and LAM, including: Research updates, including upcoming clinical studies and trials for TSC and LAM Behavior and mental health LAM-specific topic... Read More