The Sudden Unexpected Death in Epilepsy (SUDEP) Quality Improvement Initiative aims to evaluate current communication among healthcare providers and assess the knowledge and perceptions of patients, families, and caregivers about SUDEP. Ultimately, the goal is to improve SUDEP education for both TSC patients and the healthcare professionals caring for them.
If you are interested in learning more about the SUDEP Quality Improvement Initiative please email biosample@tscalliance.org.