This one-day TSC Regional Conference will take place on Saturday, September 6, 2025 at the Iowa Memorial Union at the University of Iowa in Iowa City, IA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals, Nobelpharma
Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.
Thirty-four years ago, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: "Your child has Tuberous Sclerosis Complex." Together, they fought Joey's battle with courage and love. Sadly, just over a year after his diagnosis, Joey’s little heart could no longer carry
This one-day TSC Regional Conference will take place on Saturday, November 8, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles, CA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is
Join Michele D. Della Costa, MS, LMFT-QS, on Thursday, December 18, 2025 at 7:00 pm ET as she leads a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. This conversation will offer practical advice on navigating the mental burden of managing care for a loved one with TSC, including how
Join us for an Ask an Advocate session! Join Wendy Anderson, TSC Alliance Education Peer Mentor, on Monday, February 9, 2026, at 8 pm ET as she leads a focused and empowering conversation on how families impacted by TSC and other disabilities can engage in meaningful policy advocacy at the local, state, and federal levels.
The March topic call will take place on Wednesday, March 18, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. REGISTER HERE
Join us in Sugar Land, TX on Saturday, April 11, 2026, at Brazos River Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Houston, TX area —all united by hope, connection, and the drive to make a difference. Whether you join us in person or participate virtually, your presence