Skip to content
TSC Alliance
  • About Us
    • About the TSC Alliance
    • Our Vision
    • Our Team
    • Our Leadership
    • Our Results
    • Corporate Policies
    • FAQs
    • Careers
  • Healthcare Providers
  • Researchers
    • Research Strategy
    • Grants & funding
    • Preclinical research
    • Natural History Database
    • Biosample Repository
    • Clinical Research Consortium
    • Research conferences
    • TSC Alert
    • International Scientific Advisory Board
    • Manuel R. Gomez Award
  • En Español
  • International
  • en English
    • en English
    • fr French
    • es Spanish
Search
  • Understand TSC
    • What is TSC?
    • Genetics
    • Clinical Manifestations
    • Prognosis
    • Diagnostic criteria
    • Surveillance & treatment
  • Navigate TSC
    • Beginning Your Journey
      • Prenatal diagnosis
      • Childhood diagnosis
      • Adult diagnosis
    • Navigating Life Stages
      • Coordination of care
      • Caregiver resources
      • Surveillance & management
      • Mental health
    • Pharmacy Resources
      • Medication access issues
      • Medication resources
      • Types of pharmacies
    • TSC-associated neuropsychiatric disorders (TAND)
    • Stories of Hope
  • Find Support
    • Find a TSC Clinic
    • Bcureful travel & lodging assistance
    • Educational support
    • Community support network
    • Adult support
    • Connect with a Support Navigator
  • Resources
    • Resource Library
    • TSC Academy
  • Participate in research
    • TSC clinical trials
      • TSC Clinical Trial Finder
    • TSC Biosample Repository & Natural History Database
    • Anya’s Accelerator
    • Reproductive and Perinatal Health Initiative
    • Seizures and TSC: your data matters!
  • Get Involved
    • Volunteer
      • Community Leadership Hub
    • Government advocacy
    • TSC Matters E-Newsletter
    • Become a member
    • Join Team TSC
    • Step Forward to Cure TSC
    • Ways to give
  • News
  • Events
  • Donate
Search

TSC Research Matters

Research Updates

Study Explores Similarities between Tuberous Sclerosis Complex and Alzheimer’s Disease

This study investigates a brain disorder called tuberous sclerosis complex (TSC) and its connection to a type of abnormal protein buildup known as tau (also referred to as tauopathy), which

Read More: Study Explores Similarities between Tuberous Sclerosis Complex and Alzheimer’s Disease

Research Reveals Extracellular Vesicles as Promising Biomarkers for Tuberous Sclerosis Complex

A new study has found that extracellular vesicles (EVs)—tiny, cell-derived par...

Read More: Research Reveals Extracellular Vesicles as Promising Biomarkers for Tuberous Sclerosis Complex

Study Identifies Key Inflammatory Biomarkers Linked to Epilepsy in Tuberous Sclerosis Complex

A new study has identified a distinct inflammatory signature in people with tube...

Read More: Study Identifies Key Inflammatory Biomarkers Linked to Epilepsy in Tuberous Sclerosis Complex

Understanding the Role of Macrophages in Lymphangioleiomyomatosis (LAM)

In a recent study, researchers investigated the immune microenvironment in Lymph...

Read More: Understanding the Role of Macrophages in Lymphangioleiomyomatosis (LAM)

Impact of SUDEP on Mortality in Tuberous Sclerosis Complex

Two recent papers looked at distinct sources of data to understand causes of pre...

Read More: Impact of SUDEP on Mortality in Tuberous Sclerosis Complex

Understanding Disclosure of Tuberous Sclerosis Complex to Romantic Partners

This research paper explores the complex issue of disclosing a tuberous sclerosi...

Read More: Understanding Disclosure of Tuberous Sclerosis Complex to Romantic Partners

Epilepsy Surgery in Tuberous Sclerosis Complex: A Real-World Study

This research paper presents a comprehensive study on epilepsy surgery outcomes ...

Read More: Epilepsy Surgery in Tuberous Sclerosis Complex: A Real-World Study

Understanding the Impact of Seizures on Development in Tuberous Sclerosis Complex

In a recently published study, researchers found that accumulated seizure burden...

Read More: Understanding the Impact of Seizures on Development in Tuberous Sclerosis Complex

Searching for Blood-based Biomarkers for Kidney Angiomyolipoma and Cysts in Tuberous Sclerosis Complex

Newly published research shows the feasibility of finding blood-based methods to...

Read More: Searching for Blood-based Biomarkers for Kidney Angiomyolipoma and Cysts in Tuberous Sclerosis Complex

Understanding Tuberous Sclerosis Complex Through Phenotypic Clustering

In a new study using the TSC Alliance’s Natural History Database, researchers ...

Read More: Understanding Tuberous Sclerosis Complex Through Phenotypic Clustering

The role of the TSC Alliance in advancing therapy development: a patient organization perspective

Finding a new treatment for any disease is a long and expensive process, and it ...

Read More: The role of the TSC Alliance in advancing therapy development: a patient organization perspective
  • Topics
    • Ask a TSC Expert
    • Donor Profile
    • TSC Research Changes Lives
    • Research Updates
  • Posts by Date



Subscribe to Receive TSC Research Matters via Email:

×

TSC Research Matters

Please complete the form below to subscribe.

TSC Research Matters Subscribe form
Name *
Name
First Name
Last Name
Check the box below to opt-in to receiving email from the TSC Alliance. *
TSC Alliance

TSC Alliance
8737 Colesville Road, Suite 400
Silver Spring, Maryland 20910-3921 USA
800.225.6872 (Toll-Free) 301.562.9890
info@tscalliance.org
EIN: 95-3018799

Contact Us | Media | Disclaimer | Privacy Policy | Terms of Use

  • Facebook
  • Twitter
  • YouTube
  • Instagram
  • LinkedIn
  • Tiktok
  • Inspire
  • Threads
BBB Accredited Charity Charity Navigator - Four Star Great Non-Profits 2022 Top rated Platinum Transparency 2023 - Candid iSAN NORD Touch Neurology Advancing Collaboration Pledge RDDC Rare Epilepsy Network Neurology Live Strategic Alliance Rare Foundation Alliance Seizure Action Plan Coalition ATS PAR

This website is made possible through sponsorships from: Jazz Pharmaceuticals Nobel Pharma Liva Nova Mallinckrodt Pharmaceuticals Marinus Upshire Smith Mass Mutual

The information you obtain at this site is not, nor is it intended to be, medical advice.   Full Disclaimer  |  © 2026 TSC Alliance  |  Website by Teramark

Search
Generic filters
Exact matches only
Search in title
Search in content
Search in excerpt

Popular Search Terms:

  • What is TSC?
  • Find a TSC clinic
  • Diagnostic criteria
  • TSC-associated neuropsychiatric disorders (TAND)
  • Brain abnormalities
  • Participate in research
  • 50 Forward Fund
Close
  • Home
  • Understanding TSC
    ▼
    • What is TSC?
    • Genetics
    • Clinical Manifestations
    • Prognosis
    • Diagnostic criteria
    • Surveillance & treatment
  • Navigating TSC
    ▼
    • Prenatal diagnosis
    • Childhood diagnosis
    • Adult diagnosis
    • Coordination of care
    • Caregiver resources
    • Mental health
    • Surveillance & management
    • Medication access issues
    • Medication resources
    • Pharmacy Resources
  • TAND
    ▼
    • TAND Overview
    • Autism in TSC
    • Dysregulated behaviors
    • Eating and sleep difficulties in TSC
    • Mood and anxiety difficulties in TSC
    • Neuropsychological issues in TSC
    • Overactivity and impulsivity in TSC
    • Scholastic difficulties in TSC
    • Psychosocial issues in TSC
  • Stories of hope
  • Find Support
    ▼
    • Find a TSC Clinic
    • Bcureful travel & lodging assistance
    • Educational support
    • Community support network
    • Connect with a Support Navigator
  • Resources
  • Participate in research
    ▼
    • TSC clinical trials
    • TSC Clinical Trial Finder
    • TSC Biosample Repository & Natural History Database
    • Anya’s Accelerator
    • Reproductive and Perinatal Health Initiative
    • Seizures and TSC: your data matters!
  • Get Involved
    ▼
    • Volunteer
    • Community Leadership Hub
    • Government advocacy
    • TSC Matters E-Newsletter
    • Become a member
    • Join Team TSC
    • Ways to give
  • News
  • Events
  • Donate
  • About Us
    ▼
    • About the TSC Alliance
    • Our Vision
    • Our Team
    • Our Leadership
    • Our Results
    • Corporate Policies
    • FAQs
    • Careers
  • Healthcare Providers
  • Researchers
    ▼
    • Research Strategy
    • Grants & funding
    • Preclinical research
    • Natural History Database
    • Biosample Repository
    • Clinical Research Consortium
    • TSC Alert
    • Research conferences
    • Manuel R. Gomez Award
  • En Español
  • International
This website uses cookies to improve your user experience. By using this site you agree to our use of cookies. Please read our Privacy Policy to learn more.