Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. These calls are hosted monthly on the third Wednesday of the month. You can join using your computer or dial in on the phone.
One-day Transition Workshops will feature local clinicians and resources specializing in the transition from pediatric to adult health care and transitions from postsecondary education that include: further education, employment, and independent living in individuals with TSC. The sessions will provide families and individuals with recommendations and resources that provide timelines and supports available on how
The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. These calls are hosted monthly on the third Wednesday of the month. You can join using your computer or dial in on the phone.
Join us for an evening of progress and promise as we celebrate the 50th Anniversary of the TSC Alliance at Cipriani 42nd Street in New York City! Learn more and purchase your ticket here.
The TSC Alliance and Team TSC are proud to be an Official Charity Partner with the 2024 TCS New York City Marathon on Sunday, November 3, 2024. The TCS New York City Marathon course runs 26.2 miles through the five boroughs of NYC. The TSC Alliance is thrilled to have five runners participating in this event. Each Team TSC
One-day Regional Conferences feature leading local researchers and clinicians specializing in TSC. Topics will include sessions across the lifespan of TSC, including: Research updates, including upcoming clinical studies and trials for TSC Behavior and mental health Genetics and gene therapy Women’s health issues Seizure types and treatments Kidney involvement and treatment options Please note: Childcare
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. These calls are hosted monthly on the third Wednesday of the month. You can join using your computer or dial in on the phone.
The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. These calls are hosted monthly on the third Wednesday of the month. You can join using your computer or dial in on the phone.
The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER
Mark your calendars now for the 2025 International TSC Research Conference, hosted by the TSC Alliance, scheduled for June 26-28, 2025, at the Bethesda North Marriott in Bethesda, MD. The conference will focus on structured, collaborative discussions on groundbreaking research topics. REGISTRATION OPENING IN EARLY 2025. More details to follow. Conference Co-Chairs: Shafali Spurling Jeste,
