Ask an Advocate
Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.
10 events found.
Adult Topic Call
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The October call will be an open forum format, providing an opportunity to meet with other adults living with TSC and ask questions valuable
2nd Canadian Symposium on Neurofibromatosis & Tuberous Sclerosis
CHU Sainte-Justine 3175 Chemin de la Côte-Sainte-Catherine, Montréal, QC, CanadaTARGET AUDIENCE This Symposium is aimed to the patients and families, as well as clinicians and health professionals (doctors, nurses, researchers). FORMAT Since the symposium is intented to be a place for exchanges it will be in person only. REGISTRATION FEE Registration fee for everyone: $25 Register here PROGRAM October 16: for patients and families In
$25
Featured
2025 TCS New York City Marathon
New York City Drum Road, Staten Island, New York, United StatesThe TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday, November 2, 2025. These passionate individuals will take to the streets of NYC, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis
TSC Regional Conference – Los Angeles, CA
UCLA Meyer and Renee Luskin Conference Center 425 Westwood Plaza, Los Angeles, CA, United StatesThis one-day TSC Regional Conference will take place on Saturday, November 8, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles, CA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is
Epilepsy Awareness Day @ Disneyland® Resort
Disneyland Hotel Convention Center 1150 Magic Way, Anaheim, CA, United StatesJoin us for the 13th Annual Epilepsy Awareness & Education Expo. 📍 Disneyland Hotel, Anaheim, CA 📅 November 10–11, 2025 This FREE two-day event brings together the largest gathering of epilepsy professionals, advocates and families in the country. Come explore: 100+ exhibitors including top epilepsy centers & providers Cutting-edge anti-seizure meds and technologies National support
TS Canada ST Educational Series – Transitioning into adult care for TSC patients/promoting reproductive health and well-being in adolescents with TSC
Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
Adult Topic Call
Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The November Topic Call will feature Dean Aguiar, PhD, Vice President of Translational Research at the TSC Alliance. Dean will provide an update on
Ask an Advocate
Join us on Monday, December 8, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the December 8, 2025 Ask an Advocate session here.
2026 TSC World Conference
Gaylord Rockies Resort & Convention Center North Gaylord Rockies Boulevard 6700, Aurora, CO, United StatesMark your calendars for the 2026 TSC World Conference scheduled for July 30 to August 1, 2026, at the Gaylord Rockies Resort & Convention Center in Aurora, CO! Conference programming will begin at 1 pm MT on Thursday, July 30 and will conclude with a dinner and celebration in the evening on Saturday, August 1. Book your