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News

Recent Posts

The TSC Alliance Thanks Carol Herscot for Her Foundational Gift for TSC Research

The TSC Alliance is thrilled to announce we received a generous $1 million gift from Carol Herscot to support tuberous sclerosis complex (TSC) research, in honor of her son Bradley

Read More: The TSC Alliance Thanks Carol Herscot for Her Foundational Gift for TSC Research

May is TSC Awareness Month!

May is TSC Awareness Month, and Thursday, May 15 is TSC Global Awareness Day! F...

Read More: May is TSC Awareness Month!

Update on TSCRP Funding

UPDATE (5/5/25) Dear TSC community members, The TSC Alliance and our grassroots ...

Read More: Update on TSCRP Funding

Join us for the 2025 TSC Regional Conference Series!

These one-day TSC Regional Conferences aimed at individuals with tuberous sclero...

Read More: Join us for the 2025 TSC Regional Conference Series!

Reproductive and Perinatal Health Initiative – Participate in the survey here!

The TSC Alliance has launched a Reproductive and Perinatal Health Initiative com...

Read More: Reproductive and Perinatal Health Initiative – Participate in the survey here!

TSC Alliance Statement of Support for Those Impacted by the Los Angeles Wildfires

The TSC Alliance extends our heartfelt thoughts and deepest sympathies to all th...

Read More: TSC Alliance Statement of Support for Those Impacted by the Los Angeles Wildfires

The Application window for abstracts for the 2025 TSC International Research Conference has now closed

The Application window for abstracts for the 2025 TSC International Research Con...

Read More: The Application window for abstracts for the 2025 TSC International Research Conference has now closed

Announcing the 2025 TSC Canada ST Educational Series

Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hos...

Read More: Announcing the 2025 TSC Canada ST Educational Series

Tune in for the 2025 Transition Webinar Series!

The 2025 TSC Transition Webinar Series will provide parents, caregivers and ad...

Read More: Tune in for the 2025 Transition Webinar Series!

In Memoriam: Gina Lee, PhD, University of California Irvine

The TSC Alliance and the tuberous sclerosis complex (TSC) community are mourning...

Read More: In Memoriam: Gina Lee, PhD, University of California Irvine

Announcing the Steven Sparagana Legacy Fund

The Steven Sparagana Legacy Fund was created in honor of Steven Sparagana, MD’...

Read More: Announcing the Steven Sparagana Legacy Fund

New TSC Academy course available!

A new TSC Academy course, “Intro to Clinical Trials,” provides an ov...

Read More: New TSC Academy course available!

Caregiver Sleep Study

The University of Birmingham are conducting a study ‘Understanding Caregiver E...

Read More: Caregiver Sleep Study

New publication on International consensus recommendations for TAND

International consensus recommendations for the identification and treatment of ...

Read More: New publication on International consensus recommendations for TAND

Sabril Supply Issue Recommendations

The TSC Alliance® is aware of the current supply issue with Sabril Oral Solutio...

Read More: Sabril Supply Issue Recommendations

0 to 6 months old with TSC needed for research study

Why are we doing this study? Epilepsy is very common in infants diagnosed with t...

Read More: 0 to 6 months old with TSC needed for research study
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TSC Alliance
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  • Home
  • Understanding TSC
    ▼
    • What is TSC?
    • Genetics
    • Clinical Manifestations
    • Prognosis
    • Diagnostic criteria
    • Surveillance & treatment
  • Navigating TSC
    ▼
    • Prenatal diagnosis
    • Childhood diagnosis
    • Adult diagnosis
    • Coordination of care
    • Caregiver resources
    • Mental health
    • Surveillance & management
    • Medication access issues
    • Medication resources
    • Pharmacy Resources
  • TAND
    ▼
    • TAND Overview
    • Autism in TSC
    • Dysregulated behaviors
    • Eating and sleep difficulties in TSC
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    • Neuropsychological issues in TSC
    • Overactivity and impulsivity in TSC
    • Scholastic difficulties in TSC
    • Psychosocial issues in TSC
  • Stories of hope
  • Find Support
    ▼
    • Find a TSC Clinic
    • Bcureful travel & lodging assistance
    • Educational support
    • Community support network
    • Connect with a Support Navigator
  • Resources
  • Get Involved
    ▼
    • Volunteer
    • Community Leadership Hub
    • Participate in research
    • Anya’s Accelerator
    • TSC Biosample Repository & Natural History Database
    • Seizures and TSC: your data matters!
    • TSC clinical trials
    • Government advocacy
    • TSC Matters E-Newsletter
    • Become a member
    • Join Team TSC
    • Ways to give
  • News
  • Events
  • Donate
  • About Us
    ▼
    • About the TSC Alliance
    • Our Vision
    • Our Team
    • Our Leadership
    • Our Results
    • Corporate Policies
    • FAQs
    • Careers
  • Healthcare Providers
  • Researchers
    ▼
    • Research Strategy
    • Grants & funding
    • Preclinical research
    • Natural History Database
    • Biosample Repository
    • Clinical Research Consortium
    • TSC Alert
    • Research conferences
    • Manuel R. Gomez Award
  • En Español
  • International
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