Join us for Step Forward to Cure TSC® in Harbor City, CA on Saturday, June 7, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the Southern California TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance's efforts to
We’re thrilled to announce that Step Forward to Cure TSC® is coming to the Pleasant View, UT area on Saturday, June 7, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the Utah area TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward
Join us on June 9 at 8 pm ET for Ask an Advocate, featuring the first of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will discuss sensory processing and the four main sensory processing patterns, helping students, families and advocates better understand how sensory differences impact learning and daily life. Don’t
Join the TSC Alliance for the third webinar of the 2025 Transition Webinar Series! This webinar will take place on Tuesday, June 17, 2025 at 7 pm ET. This webinar will feature Kelly Piacenti, MA, ChSNC, a Chartered Special Needs Consultant® from MassMutual SpecialCare and Jerry L. Hulick, CLU, ChFC, ChSNC, CLTC from The Washington Group Special Care Planning Team to
Join us on August 11 at 8 pm ET for our Ask an Advocate call featuring the second half of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will explore how sensory processing impacts educational outcomes and discuss interventions tailored to different sensory processing types. Learn practical strategies to support student participation
Join us fro the next webinar in the 2025 Transition Webinar Series on Thursday August 21 at 7 pm ET. Our next webinar in our 2025 Transition Webinar Series will be Navigating Social Security Benefits for Individuals with Disabilities. Join us for an informative and practical session designed to support families in understanding and accessing
This one-day TSC Regional Conference will take place on Saturday, September 6, 2025 at the Iowa Memorial Union at the University of Iowa in Iowa City, IA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals, Nobelpharma
Join us on Monday, October 13, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the October 13, 2025 Ask an Advocate session here.
Thirty-four years ago, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: "Your child has Tuberous Sclerosis Complex." Together, they fought Joey's battle with courage and love. Sadly, just over a year after his diagnosis, Joey’s little heart could no longer carry
This one-day TSC Regional Conference will take place on Saturday, November 8, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles, CA, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is
Join Michele D. Della Costa, MS, LMFT-QS, on Thursday, December 18, 2025 at 7:00 pm ET as she leads a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. This conversation will offer practical advice on navigating the mental burden of managing care for a loved one with TSC, including how
Join us for an Ask an Advocate session! Join Wendy Anderson, TSC Alliance Education Peer Mentor, on Monday, February 9, 2026, at 8 pm ET as she leads a focused and empowering conversation on how families impacted by TSC and other disabilities can engage in meaningful policy advocacy at the local, state, and federal levels.