The TSC Alliance and Team TSC are proud to be an Official Charity Partner with the 2024 TCS New York City Marathon on Sunday, November 3, 2024. The TCS New York City Marathon course runs 26.2 miles through the five boroughs of NYC. The TSC Alliance is thrilled to have five runners participating in this event. Each Team TSC
One-day Regional Conferences feature leading local researchers and clinicians specializing in TSC. Topics will include sessions across the lifespan of TSC, including: Research updates, including upcoming clinical studies and trials for TSC Behavior and mental health Genetics and gene therapy Women’s health issues Seizure types and treatments Kidney involvement and treatment options Please note: Childcare
The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER
The Ask an Advocate webinar series occurs every two months on the second Monday at 8 pm ET. Join Director, Outreach and Support Shelly Meitzler and Community Programs Manager Elizabeth Skufca for an ask an advocate session. Bring your questions about evaluations, Individualized Education Programs (IEPs) or 504 plans. REGISTER
Join the TSC Alliance for the 2025 Transition Webinar Series! The first webinar of a six-part series on transitioning to adulthood will take place on Thursday, February 13, 2025 at 8 pm ET. This webinar will feature Elizabeth Thiele, MD, PhD, Director, Pediatric Epilepsy Program; Director, Carol and James Herscot Center for Tuberous Sclerosis
Get your tickets to Comedy for a Cure! Join us for an evening of laughter and hope that’s out of this world! Sunday, April 6, 2025 | Vibiana Learn more and get your tickets now.
We’re thrilled to announce that Step Forward to Cure TSC® is coming to Elk Grove, CA on Saturday, April 12, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the California TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance's
We’re thrilled to announce that Step Forward to Cure TSC® is coming to Sugar Land, TX on Sunday, April 13, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the Houston area TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC
Join us for our April Ask an Advocate session. This session will feature an open forum with Shelly Meitzler, Director, Outreach & Support, where you can ask about Evaluations, Individualized Education Programs (IEPs), 504 plans and more! We look forward to seeing you on Monday, April 14 at 8 pm ET.
Join us for the second workshop in the 2025 Transition workshop series on Thursday, April 24, 2025 at 8 pm ET where we will discuss critical considerations for individuals of all ages who have a disability. We’ll review the importance of creating a life care plan, how it can help, and who should be involved.
Join us for Step Forward to Cure TSC® in Renton, WA on Sunday, April 27, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the Washington area TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance's efforts to fund groundbreaking
We’re thrilled to announce that Step Forward to Cure TSC® is coming to Chicago, IL on Sunday, April 27, 2025! This exciting event, hosted by the TSC Alliance, is a chance for the Illinois TSC community to come together, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance's efforts
