Understanding the Impact of Seizures on Development in Tuberous Sclerosis Complex
In a recently published study, researchers found that accumulated seizure burden, rather than age of seizure onset, is a significant predictor of neurodevelopmental outcomes at 36 months of age. These
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Why We Give: A Passion for Research
Stephanie and Tom McCann watched helplessly as their infant daughter, Claire, su...
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2025 TSC International Research Conference: Forging new discoveries
The 2025 TSC International Research Conference: Engage, Accelerate, Transform wa...
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The TSC Alliance is working to create a future where everyone affected by sclero...
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Carmen Priolo: Chasing drug targets and metabolic biomarkers for TSC
After years working in the cancer field, scientist Carmen Priolo, MD, PhD, disco...
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TSC Research Changes Lives: Rosy’s Story
Rosy was just four months old when she was diagnosed with tuberous sclerosis com...
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Brendan Manning: Unraveling the cell’s inner workings
For Brendan Manning, PhD, today’s advances in basic science are the stepping s...
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Searching for Blood-based Biomarkers for Kidney Angiomyolipoma and Cysts in Tuberous Sclerosis Complex
Newly published research shows the feasibility of finding blood-based methods to...
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In a new study using the TSC Alliance’s Natural History Database, researchers ...
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Why I give: For Helen and others like her
When Brittany Smith learned that her infant daughter Helen had tuberous sclerosi...
Read More: Why I give: For Helen and others like her The role of the TSC Alliance in advancing therapy development: a patient organization perspective
Finding a new treatment for any disease is a long and expensive process, and it ...
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The Reason for Giving: Honey Amado
Micah Amado was born in 1984 with a quick wit and a kind heart. His mother, Hone...
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TSC Research Changes Lives: Amaan’s Story
When Noor and Zohra Panjwani learned their infant son Amaan had tuberous scleros...
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A conversation with Steve Roberds, PhD
TSC Alliance Chief Scientific Officer Steve Roberds, PhD, leads the development ...
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