Cysts and angiomyolipomas similar to those found in the kidneys have been observed in other organs, such as the adrenal gland, liver, lung, ovary and pancreas. These lesions are usually asymptomatic and do not require treatment.

Biopsy of a suspicious lesion is recommended only when the lesion is unusually large, growing, causing symptoms, or exhibiting other suspicious characteristics. If they are symptomatic, they should be treated by the appropriate specialist and be removed if medically necessary.

Please reach out to our support navigator if you or your loved one has other organ involvement for additional assistance.

Reviewed by Ashley Pounders, MSN, FNP-C, Director of Medical Affairs, TSC Alliance, November 2023.

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