Search Results for: Find a TSC clinic

The TSC Alliance supports the vital role a tuberous sclerosis complex (TSC) clinic can play in improving the lives of TSC patients. Use the resources below to find a TSC

The results from the 2010 Constituency Survey will be used to help the TSC Alliance define priorities going forward and guide us as we develop goals and objectives to reach

A clinical trial is a type of research study using human volunteers designed to determine the safety and effectiveness of a drug, biologic (such as a vaccine), device (such as

TSC Academy is an online educational platform created for the tuberous sclerosis complex (TSC) community. The platform features lessons about the basic, preclinical and clinical science of TSC, how research

The TSC Clinical Research Consortium has been the cornerstone of Federally funded research efforts in the US for the past decade. Only through the collaborative research efforts of the TSC

The TSC Alliance is an internationally recognized nonprofit that does everything it takes to improve the lives of people with TSC. We drive research, improve quality care and access and

Connect with TSC Alliance support navigators, our volunteer support network and TSC clinicians to help guide you along your unique journey. Click on a link below to learn more. FIND

Tuberous sclerosis complex (TSC) is a complicated disease. Some people live with few symptoms while others need continual support. Most people with TSC live normal lifespans. Although there is no

2024 marks the 50th anniversary of the TSC Alliance®! Throughout the year, we’ll celebrate five decades of progress as well as look forward with much promise for the future. Join

ABOUT  |  ONBOARDING  |  CURRENT VOLUNTEERS  |  NETWORKING  |  RECOGNITION  |  SUPPORT  |  MARCH ON CAPITOL HILL  |  FAQ’s Onboarding We’re thrilled to have you join the TSC Alliance volunteer

Are you providing care to a patient with a suspected tuberous sclerosis complex (TSC) diagnosis? Here are five things you need to know: Early diagnosis and management are critical to

50 Forward Fund The last 50 years have been transformative. The TSC Alliance has funded more than $37 million in TSC research and through these investments have significantly expanded our

The TSC Alliance draws physicians, researchers, industry partners, and the TSC community into the research process, and thus they are uniquely positioned to help drastically alter the course of this

Tuberous sclerosis complex (TSC) is a complicated disorder that requires lifelong care from a variety of specialists. The TSC Alliance provides the resources below to connect healthcare providers with TSC

The Bcureful Travel Fund® at the TSC Alliance underwrites the TSC Travel and Lodging Patient Assistance Program, which is administered by the National Organization for Rare Disorders (NORD). This travel

You do not need to have all the answers or become an expert in TSC to navigate you/your loved one’s care. You can empower yourself by clearly advocating your understanding

Living with a rare disease is difficult and there will be challenging barriers throughout the journey. Challenges are commonly centered around limited local resources, structural barriers to access care, insurance

It is common for medical providers to be unfamiliar with TSC, including neurologists, pediatricians and primary care providers (PCPs). It is crucial to have a local healthcare team involved in

The following table provides guidelines to help you and your loved one manage the treatment of TSC. Additional information for your physician is available here. Surveillance & management recommendations for TSC

Most people with TSC will live a normal life span. Although there is no cure, there is hope. Research has proven that early diagnosis and intervention(s) are key for optimizing

The TSC Alliance has a long-standing history of international involvement within the TSC community: supporting advocacy and research throughout the world with our Global Alliance Program and International Scientific Advisory