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What is TSC?

Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. Despite its complexity,

TSC Matters Post

Meet the 2024 Team TSC NYC Marathon runners!

  The TSC Alliance is thrilled to have six Team TSC athletes participating in the TCS NYC Marathon on Sunday, November 3, 2024. This year’s team consists of TSC individuals, parents, relatives, specialists and researchers who

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2024 Regional TSC Conference Series – Palo Alto, CA

One-day Regional Conferences feature leading local researchers and clinicians specializing in TSC. Topics will include sessions across the lifespan of TSC, including: Research updates, including upcoming clinical studies and trials

TSC Matters Post

Sleep Study in TSC

  Aims of the study The main aim of this study is to document current sleep management strategies employed by families and or paid care staff caring for children or

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New TSC Academy course available!

A new TSC Academy course, “TSC Clinical Consensus Guidelines,” provides an overview of the importance of the International Tuberous Sclerosis Complex Diagnostic Criteria and Surveillance and Management Recommendations , how they

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Register today for the 2024 Step Forward to Cure TSC!

Register today for the 2024 Step Forward to Cure TSC® at www.stepforwardtocuretsc.org. ⁠ Join thousands of tuberous sclerosis complex (TSC) community members, corporate partners, and other advocates for a month-long series of events

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2024 Regional TSC Conference Series – Chapel Hill, NC

One-day Regional Conferences feature leading local researchers and clinicians specializing in TSC. Topics will include sessions across the lifespan of TSC, including: Research updates, including upcoming clinical studies and trials

TSC Alert

TSC research opportunity

TSC clinician and researcher Dr. Mark Keezer and Dr. Catherine Larochelle have an opening in their lab for a PhD student or postdoctoral fellow at the CHUM Research Center (CRCHUM) in Montreal,

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Step Forward to Cure TSC in Tulsa, Oklahoma

You’re invited to join the TSC Alliance in celebrating our 50th anniversary by attending the Step Forward to Cure TSC event on Saturday, May 18 at LaFortune Park in Tulsa, OK. Register

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Step Forward to Cure TSC Walk in Pleasant View, UT

You’re invited to join the TSC Alliance in celebrating our 50th anniversary by attending the Step Forward to Cure TSC event on Saturday, April 27 at Orchard Springs Elementary School in Pleasant

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2024 TSC Alliance Summit

2024 marks the TSC Alliance’s 50th Anniversary Year. To kick off this momentous year, we are hosting the 2024 TSC Alliance Summit, which includes the Board of Directors Meeting, Endowment

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TSC clinical trials

A clinical trial is a type of research study using human volunteers designed to determine the safety and effectiveness of a drug, biologic (such as a vaccine), device (such as

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TSC Connect Registration Form

Thank you for your interest in the TSC Connect program! By completing the information below, you are agreeing you would like to serve as a TSC Connect Volunteer.  Upon receipt

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TSC Clinics

Hamilton, Ontario McMaster Children’s Hospital Directors: Dr. Robyn Whitney and Dr. Elisabetta Trinari Coordinator/ Nurse Practitioner: Cynthia Sloan Birbeck, NP Age Range Seen: 0-18 Clinic Frequency: Monthly Transition Program Available:

FAQ

TSC Alliance-funded testing opportunities

All members can propose compounds for testing and benefit from the shared data generated by TSC Alliance funded studies. Compound nomination form (to be reviewed twice yearly)   PIs have

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TSC Academy

TSC Academy is an online educational platform created for the tuberous sclerosis complex (TSC) community. The platform features lessons about the basic, preclinical and clinical science of TSC, how research

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Baby Talk in TSC study (2023 Webinar Series)

Tanjala Gipson, MD, Director of the TSC-Associated Neuropsychiatric Disorders Clinic at Le Bonheur Children’s Hospital discusses the Baby Talk in TSC study, which is currently enrolling participants. The study is

FAQ

Publications using TSC biosamples

Hsieh L, Wen J, Nguyen L, Zhang L, Getz S, Torres-Reveron J, Wang Y, Spencer D, and Bordey A. Ectopic HCN4 expression drives mTOR-dependent epilepsy in mice. Sci Transl Med.

FAQ

Why have we helped set up TSC Clinics?

Service to those affected by TSC across the lifespan is part of our mission, so it was natural for the TSC Alliance to encourage healthcare providers to create TSC Clinics

FAQ

What does the TSC Alliance logo symbolize?

The TSC Alliance logo depicts intertwining colorful lines that represent everyone’s unique journey with TSC. The lines overlap and join together to represent the strength of our community. Each colorful

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About the TSC Alliance

The TSC Alliance is an internationally recognized nonprofit that does everything it takes to improve the lives of people with TSC. We drive research, improve quality care and access and

FAQ

Clinical management of TSC

Because TSC affects multiple organs, diagnostic studies are recommended for all individuals with a new diagnosis of TSC regardless of their outward manifestations of the disease. For example, published recommendations

FAQ

Surveillance & management recommendations for TSC

For the Newly Diagnosed or Suspected TSC For Individuals Already Diagnosed with TSC Genetics Obtain three-generation family history to assess for additional family members at risk of TSC. Offer genetic

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International TSC Clinics

CANADA Hamilton, Ontario – McMaster Children’s Hospital Directors: Dr. Robyn Whitney and Dr. Elisabetta Trinari Coordinator/ Nurse Practitioner: Cynthia Sloan Birbeck, NP Age Range Seen: 0-18 Clinic Frequency: Monthly Transition

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Step Forward to Cure TSC volunteer interest form

Volunteers needed! Join us as TSC community members, corporate partners and other supporters champion the efforts to fund groundbreaking TSC research, offer critically needed support programs, and increase awareness in

FAQ

Shop for TSC

The TSC Alliance is honored to have several partners who generously contribute of portion of their sales to the organization. This is a great way to contribute to the TSC

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Run with Team TSC

Team TSC is a dedicated group of people running on behalf of the 50,000 people in the US and 1 million worldwide with tuberous sclerosis complex (TSC).   Upcoming Team

FAQ

Publications using TSC biosamples

Hsieh L, Wen J, Nguyen L, Zhang L, Getz S, Torres-Reveron J, Wang Y, Spencer D, and Bordey A. Ectopic HCN4 expression drives mTOR-dependent epilepsy in mice. Sci Transl Med.

FAQ

Seizures and TSC: Your data matters!

The TSC Alliance has established a data sharing partnership with Seizure Tracker. Seizure Tracker allows users to log seizure occurrences and other epilepsy care events such as medications, diet, and

FAQ

TSC clinical trials 

Choosing to participate in a clinical trial is an important personal decision.  It is often helpful to talk to a physician, family members, or friends about deciding to participate in

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Seizures and TSC: your data matters!

The TSC Alliance and Seizure Tracker™ have joined together to advance epilepsy research. With your help, we can connect important seizure and clinical information to enable researchers to improve outcomes and

FAQ

TSC Alliance Adult Community Facebook Page

The TSC Alliance Adult Community Facebook Page was created as a place for adults with TSC to connect and get information about resources and upcoming TSC Alliance events for adults.

FAQ

TSC Clinic experience of care survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/your child go to for care. The survey is anonymous; your answers will not be linked

FAQ

LGBTQIA+ community and TSC

The TSC Alliance supports people with tuberous sclerosis complex (TSC) who are LGBTQIA+; therefore, the unique and unfortunate challenges experienced in this community are just as important to address as

Event

Step Forward to Cure TSC Walk in Fishers, Indiana

You’re invited to join the TSC Alliance in celebrating our 50th anniversary by attending the Step Forward to Cure TSC event on Saturday, April 13 at Billericay Park in Fishers, IN. Register today

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TSC-associated neuropsychiatric disorders

Apart from the physical manifestations of tuberous sclerosis complex (TSC), most people with TSC are affected by a broad range of behavioral, psychiatric, intellectual, academic, neuropsychological and psychosocial difficulties. Examples

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Living with TSC

Tuberous sclerosis complex (TSC) is a complicated disease. Some people live with few symptoms while others need continual support. Most people with TSC live normal lifespans. Although there is no

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Psychosocial issues in TSC

While other TAND clusters primarily impact the person with tuberous sclerosis complex (TSC), the disease impacts the entire family. The wraparound psychosocial cluster refers to issues that can also affect

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Scholastic difficulties in TSC

Difficulties in school are very common in tuberous sclerosis complex (TSC). Regardless of the intellectual ability, 60% of kids and young adults with TSC will be impacted by scholastic issues.

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Overactivity and impulsivity in TSC

Overactive, impulsive, and restless behaviors are very common in tuberous sclerosis complex (TSC). Even though manifestations typically have lower rates in adulthood than childhood, it may be seen across age,

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Neuropsychological issues in TSC

Approximately 45% to 50% of people with tuberous sclerosis complex (TSC) develop intellectual disabilities. However, profiles of strengths and weaknesses are highly variable person-to-person and are often very uneven within

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Mood and anxiety difficulties in TSC

The rates of mood and anxiety symptoms and disorders are very high in tuberous sclerosis complex (TSC), often arising in adolescence or adulthood. Difficulties in this cluster are often identified

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Eating and sleep difficulties in TSC

There is limited literature on eating-related difficulties and disorders in tuberous sclerosis complex (TSC), but difficulties with eating do present in individuals with TSC. Eating difficulties may be similar to

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Autism in TSC

As with most manifestations of tuberous sclerosis complex (TSC), there is a wide variety of presentation and autism spectrum disorder (ASD) in those with TSC is no different. ASD manifestations

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LGBTQIA+ Community and TSC

The TSC Alliance supports people with tuberous sclerosis complex (TSC) who are LGBTQIA+; therefore, the unique and unfortunate challenges experienced in this community are just as important to address as

FAQ

Issues for men with TSC

Many men with epilepsy will experience changes in sexual drive and performance. For example, many men report a decrease in sex drive and almost one-third of men with epilepsy report

FAQ

Issues for women with TSC

Hormonal fluctuations of the menstrual cycle can influence the incidence of some types of seizures. Not all seizures are sensitive to estrogen and progesterone ratios; however, this possibility may influence

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Epilepsy in adults with TSC

People with tuberous sclerosis complex (TSC) face many medical issues as they age, including new-onset seizures or ongoing epilepsy. Studies indicate more than 80% of individuals with TSC will develop

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Spotlight on TSC Alliance

2024 marks the 50th anniversary of the TSC Alliance®! Throughout the year, we’ll celebrate five decades of progress as well as look forward with much promise for the future. Join

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Understanding TSC

Learn about the disease, the different manifestations, how it is diagnosed and treatment options available. Click on a link below to learn more. What is TSC? Genetics Clinical Manifestations Prognosis

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Navigating TSC

From diagnosis through the lifespan learn how to proactively navigate medical and non-medical challenges for both those with TSC and their caregivers, while gaining insights from the lived experience of

TSC Matters Post

Caregiver Experience Survey for Individuals with TSC

Global Perspectives, specialists in recruiting caregivers and patients for scientific studies, are currently looking for caregivers of individuals living with tuberous sclerosis complex (TSC). The purpose of this study is

TSC Alert

TSC Biosample Seed Grants Available

The TSC Alliance announces a funding opportunity for 2023 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository.

TSC Matters Post

Alzheimer’s in TSC study

Tuberous Sclerosis Complex (TSC) is a genetic condition due to mutations in TSC1 or TSC2 commonly diagnosed in the first few years of life. Advances in TSC research has allowed

TSC Matters Post

Listen to the latest episode of TSC Now

Check out the newest episode of TSC Now, where host Dan Klein speaks with Justine Ravindranath, Commercial Operations Manager at Nobelpharma America, about the findings of an adult panel hosted

TSC Matters Post

TSC-STEPS trial

TSC-STEPS is a study to learn more about a drug known as Sirolimus and determine if it can prevent seizures and epilepsy in children diagnosed with TSC. The study is

TSC Matters Post

#March4TSCresearch update

Thank you to all our volunteers for your efforts advocating for Tuberous Sclerosis Complex Research Program (TSCRP) earlier this year.

TSC Matters Post

TSC MRI Study

Why are we doing this study? Researchers at Johns Hopkins are seeking participants for an MRI research study where information will be collected to develop a new non-invasive imaging technique

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Episode 43: The TSC-STEPS Trial

In this episode of TSC Now, host Dan Klein dives deep on a new clinical trial in tuberous sclerosis complex (TSC) called TSC-STEPS. TSC-STEPS is a study to learn more

TSC Matters Post

TSC MRI Study

Why are we doing this study? Researchers at Johns Hopkins are seeking participants for an MRI research study where information will be collected to develop a new non-invasive imaging technique

TSC Matters Post

Alzheimer’s in TSC Study

Tuberous Sclerosis Complex (TSC) is a genetic condition due to mutations in TSC1 or TSC2 commonly diagnosed in the first few years of life. Advances in TSC research has allowed

TSC Matters Post

Baby Talk in TSC

Why are we doing this study? Our team is investigating how TSC impacts a baby’s speech. The study is focused on examining the vocalizations and early language of infants with

TSC Matters Post

Watch the 2022 World TSC Conference Videos

All 2022 World TSC Conference videos are now available. By accessing these videos, you can learn more about clinical consensus guidelines on surveillance and treatment of TSC, research updates, caregiver resources

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients:

TSC Matters Post

Alzheimer’s in TSC Study

Tuberous Sclerosis Complex (TSC) is a genetic condition due to mutations in TSC1 or TSC2 commonly diagnosed in the first few years of life. Advances in TSC research has allowed

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients:

TSC Alert

Deadline Friday: TSC Biosample Seed Grants Available

The TSC Alliance announces a funding opportunity for 2022 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository.

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients:

TSC Alert

TSC Biosample Seed Grants Available

The TSC Alliance announces a funding opportunity for 2022 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository.

TSC Matters Post

Alzheimer’s in TSC Study

Tuberous Sclerosis Complex (TSC) is a genetic condition due to mutations in TSC1 or TSC2 commonly diagnosed in the first few years of life. Advances in TSC research has allowed

Resource

Episode 39: Inspiring a World TSC Community

In a special two-part episode of TSC Now, host Dan Klein recaps the 2022 World TSC Conference, which was held in Dallas, Texas July 28-31, 2022. In part two, Dan

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information

TSC Alert

FY22 TSCRP Funding Opportunities Now Available

The Tuberous Sclerosis Complex Research Program (TSCRP) is now accepting Pre-Applications for the fiscal year 2022 grant cycle. Three award mechanisms are available this year: Exploration – Hypothesis Development Award (up to

TSC Alert

TSC Alliance® Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information

Resource

Episode 32: The 2022 World TSC Conference

In the first episode of TSC Now in 2022, host Dan Klein provides an overview of the upcoming 2022 World TSC Conference, co-hosted by Tuberous Sclerosis Complex International (TSCi), which

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Episode 29: The TSC Navigator

In Episode 29 of TSC Now, host Dan Klein highlights TSC Navigator, an easy-to-use, interactive online tool to help guide individuals and families through the complexities of tuberous sclerosis complex

TSC Matters Post

TSC Researcher Spotlight – Felix Chan, PhD

The Developmental Synaptopathies Consortium (DSC) is composed of a group of medical centers throughout the US studying three related rare genetic syndromes that often cause autism spectrum disorder and intellectual

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients:

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients:

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information

TSC Matters Post

TSC Clinic Experience of Care Survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/your child go to for care.  Your comments in this online survey will be shared with the TSC

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news,

TSC Alert

Update on TSC Biosample Repository Project

The TSC Alliance has resumed biosample collection and is able to consent patients for the project via a 20-minute phone call. In coordination with a national mobile phlebotomy service the TSC

TSC Alert

Resarch Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients:

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA

TSC Alert

Update on TSC Biosample Repository Project

The TSC Alliance has resumed biosample collection and is able to consent patients for the project via a 20-minute phone call. In coordination with a national mobile phlebotomy service the TSC

TSC Alert

COVID-19 Considerations for TSC Medical Professionals

UPDATE: The Department of Health & Human Services (HHS), in coordination with NIH and Operation Warp Speed, has launched a central web portal called Combat COVID (combatcovid.hhs.gov/). The portal is a

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information

TSC Alert

EPISTOP Results on Prevention of Epilepsy in TSC infants

EPISTOP (Long-term, prospective study evaluating clinical and molecular biomarkers of EPIleptogenesiS in a genetic model of epilepsy – Tuberous sclerOsis comPlex) is a European consortium that has been studying the potential benefits of early

TSC Matters Post

December TSC Now Episode

In the December episode of TSC Now, a podcast by the TSC Alliance, Kelly Knupp, MD of the University of Colorado describes what infantile spasms (IS) are, why they are

TSC Matters Post

Join Us for Baking for a TSC Cure

Saturday, December 12, 2020 • 6:00 pm ET Chef Rivera, Head Pastry Chef at Bachour Miami and Founder of Women Chefs 305, will lead an hour-long virtual baking class on Zoom starting at

TSC Matters Post

TSC Clinic Experience of Care Survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/your child go to for care.  Your comments in this online survey will be shared with the TSC

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA

TSC Alert

Update on TSC Biosample Repository Project

The TSC Alliance has resumed biosample collection and is able to consent patients for the project via a 20-minute phone call. In coordination with a national mobile phlebotomy service the TSC

TSC Alert

COVID-19 Considerations for TSC Medical Professionals

UPDATE: The Department of Health & Human Services (HHS), in coordination with NIH and Operation Warp Speed, has launched a central web portal called Combat COVID (combatcovid.hhs.gov/). The portal is a

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. Check out our partner page. Subscribe to NeurologyLive to stay up to date on clinical trial news, FDA

TSC Alert

Update on TSC Biosample Repository Project

The TSC Alliance has resumed biosample collection and is able to consent patients for the project via a 20-minute phone call. In coordination with a national mobile phlebotomy service the TSC

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who were infected with COVID-19. Please circulate the following to your patients: The TSC Alliance is collecting clinical information

Resource

Episode 17: Gene Therapy in TSC

In episode 17 of TSC Now, host Dan Klein talks to Xandra Breakefield, PhD, Professor of Neurology at Harvard Medical School and a geneticist, specializing in neurology & tadiology at

TSC Matters Post

TSC Clinic Experience of Care Survey

The TSC Alliance would like to know about your experience at the TSC Clinic you/your child go to for care.  Your comments in this online survey will be shared with the TSC

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up to date on clinical trial

TSC Alert

2020 International TSC Conference Update

The International Tuberous Sclerosis Complex Research Conference 2020 has been postponed and will now take place June 17-19, 2021 at the Royal College of Physicians in London. A virtual event will also take place

TSC Alert

Update on TSC Biosample Repository Project

The TSC Alliance has resumed biosample collection and is able to consent patients for the project via a 20-minute phone call. In coordination with a national mobile phlebotomy service the TSC

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who had COVID-19 infection. Please circulate to your patients:

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up to date on clinical trial

TSC Alert

2020 International TSC Conference Update

The International Tuberous Sclerosis Complex Research Conference 2020 has been postponed and will now take place June 17-19, 2021 at the Royal College of Physicians in London. A virtual event will also take place

TSC Alert

TSC Alliance Contributes Data to RDCA-DAP

The TSC Alliance has recently contributed data to The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP), funded by the U.S. Food and Drug Administration and developed by the Critical

TSC Alert

Update on TSC Biosample Repository Project

The TSC Alliance has resumed biosample collection and is able to consent patients for the project via a 20-minute phone call. In coordination with a national mobile phlebotomy service the TSC

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who had COVID-19 infection. Please circulate to your patients:

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up to date on clinical trial

TSC Alert

2020 International TSC Conference Update

The International Tuberous Sclerosis Complex Research Conference 2020 has been postponed and will now take place June 17-19, 2021 at the Royal College of Physicians in London. A virtual event will also take place

TSC Alert

Update on TSC Biosample Repository Project

The TSC Alliance has resumed biosample collection and is able to consent patients for the project via a 20-minute phone call. In coordination with a national mobile phlebotomy service the TSC

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who had COVID-19 infection. Please circulate to your patients:

TSC Alert

TSC Alliance Contributes Data to RDCA-DAP

The TSC Alliance has recently contributed data to The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP), funded by the U.S. Food and Drug Administration and developed by the Critical

TSC Alert

2020 International TSC Conference Update

The International Tuberous Sclerosis Complex Research Conference 2020 has been postponed and will now take place June 17-19, 2021 at the Royal College of Physicians in London. A virtual event will also take place

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up to date on clinical trial

TSC Alert

Update on TSC Biosample Repository Project

The TSC Alliance has resumed biosample collection and is able to consent patients for the project via a 20-minute phone call. In coordination with a national mobile phlebotomy service the TSC

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who had COVID-19 infection. Please circulate to your patients: The TSC Alliance is collecting clinical information in their TSC

TSC Alert

TSC Alliance Partners with NeurologyLive™

The TSC Alliance has partnered with NeurologyLive to bring healthcare professionals treating neurological disorders the latest in research and practice. You can view our partner page here. Subscribe to NeurologyLive to stay up-to-date on clinical trial news,

TSC Alert

Update on TSC Biosample Repository Project

Currently, biosample collections have been paused. However, patients with TSC can still participate in this initiative. The TSC Alliance is able to consent patients for the project via a 20-minute

TSC Alert

Research Study on TSC and COVID-19

The TSC Alliance is collecting clinical information about individuals with TSC who had COVID-19 infection. Please circulate to your patients: The TSC Alliance is collecting clinical information in their TSC

Resource

Episode 12: Living with TSC During COVID-19

In episode 12 of TSC Now, host Dan Klein does a deep dive on the ongoing COVID-19 crisis and its impact on the tuberous sclerosis complex (TSC) community. Throughout the