What
A study to learn more about the effectiveness of a Tuberous Sclerosis Complex (TSC) treatment program called “Regulating Together.” This study will be primarily conducted remotely. There will be sessions to complete cognitive/behavioral testing, as well as five weeks of group session that will meet twice weekly for both children and parents/caregivers. This will last approximately 30 weeks from start to finish. (Please note that this is a research study and not treatment).
Who
- Children 8 to 18 years old with TSC and emotion dysregulation
- One or two parents/caregivers who provide care to the participant
Pay
Participants will receive up to $250 and support at no cost to them or their insurance. Travel expenses may be available.
Contact
justin.birudavol@cidd.unc.edu
Justin Birudavol, UNC Site Coordinator
919-966-4613